Weekly Reading List

Becoming Disabled
Rosemarie Garland-Thomson, New York Times - August 19, 2016

People who make a good-faith effort to explore the social and political textures of disability for the first time are at a disadvantage. Almost no matter how open-hearted, perceptive, or politically savvy they are, their initial musings can sound elementary, naive, and even misinformed to the audience most interested … people who are already steeped in Disability Culture and activism. This is obviously a better than average piece on disability for a mainstream publication. The problem is that for people who do disability work already, who read and write disability blogs, the article offers nothing new. And it gets tiring year after year seeing people in awe of discovering the most basic facts and concepts about disability. Still, I appreciate the author’s effort to introduce the basics of disability to a wider audience, and I hope the series will allow many voices of disability to catch people up as quickly and fully as possible.

Michael J. Fox used ‘Good Wife’ character to show ‘disabled people can be a--holes too’
Nicole Bitette, New York Daily News - August 20, 2016

I get where Michael J. Fox is coming from. It’s absolutely true that the most common stereotypes of disability in popular culture hinge on the idea that disabled people are sweet, innocent, and simple … sort of angelic or idealized. I definitely think that was true when I was growing up, which coincides with the peak of Fox’s acting career. But I feel a little like I do about the NYT article above. I think Fox’s assessment itself lacks some nuance and may be out of date. We need disabled characters who are real and nuanced, whether they’re “good guys” or “assholes.” And why choose between the two? In fact, one of the most common problems of being disabled in real life is that people expect us to be either one or the other … endlessly patient and kind, OR angry and oblivious to everyone else’s feelings. Maybe the goal in writing and portraying disabled characters should be real depth, not trading one TV trope for another.

No Longer Silent: Violence Against Persons With Disabilities Is An Issue Of Global Human Rights
Judith Heumann, The Huffington Post - August 19, 2016

Nothing in this essay is wrong, and I am glad someone like Judy Heumann has an official capacity with which to address the global problem of violence against people with disabilities. What bothers me a bit is the unspoken implication, or possible misapprehension, that this is a problem mainly in “other” countries and with “other” cultures, not our own. Judy Heumann is one of the true pioneers of the disability rights movement, so she has to know it’s a problem here, too. Her job is with the State Department, which concerns itself with foreign affairs, so her emphasis on the international nature of the problem makes sense. Still, I feel like there’s a real risk of thinking that violence against disabled people is so horrible, so unthinkable, that it must be something only “backward” people do. In a way that’s true, but there’s a lot of “backwardness” right here in the United States. Plus, I am more convinced than ever that training alone isn’t enough to stop it, and might even be a fig leaf that lets us off the hook from really addressing why disabled people are so frequently victimized. There’s more than ignorance and misunderstanding going on here. I don’t know what, exactly, but I just don’t think we can seminar the danger away.

Denver auditor finds the city’s disability parking system to be subpar
Kieran Nicholson, Denver Post - August 19, 2016

This article stands out for me because of the simplicity of the auditor’s statement. It sounds like he doesn’t have a deep background in disability issues … he’s just an auditor who looks at details in a dispassionate but rigorous way. And he calls out failure and bad management when he sees it. He reinforces it with a moral argument, but I get the sense that to him, the Denver accessible parking situation is an outrage, it’s just sloppy and should be fixed. The other aspect I find interesting is that Denver has been using a volunteer accessible parking enforcement program. That’s something I tried to get started a couple of times when I worked at a Center for Independent Living. I still think it’s a decent idea, but this shows how the idea can go wrong or ineffective if it isn’t managed well.

Autistic Activist Lydia X.Z. Brown Is Fighting 'Violence Affecting Disabled Folks'
Lakshmi Gandhi, NBC News - August 15, 2016

I have never met Lydia, and have barely communicated with them even in social media, though we are technically connected and have mutual “friends” and colleagues. They have taught me a lot though. I’m not sure if “uncompromising” is a right or fair word to describe them, but it’s the adjective that comes to my mind. They apply principles of disability rights and social justice with absolute, sometimes brutal rigor. That means that I find myself cringing sometimes at things they write, but then realizing that I can’t escape the fact that they’re right on the merits. Which is not to say they aren’t diplomatic to. They must be. I suspect others sense something like this, too, since they are so widely respected and sought-after as a spokesperson for a particular brand of disability rights and intersectionality. Maybe “integrity” is a better word.

Paralympic Woes

Rio 2016 Paralympic Games logo

Paralympics dramatically scaled back due to budget crisis
Marissa Payne, Washington Post - August 19, 2016

Budget shortfall forces major Paralympics cutbacks
Stephanie Nolan, Globe and Mail - August 20, 2016

Rio Paralympics 2016: Games to go ahead with major budget cuts
BBC, Disability Sport - August 20, 2016

I'm not sure what to think about the budget shortfall and planned scale-backs of the Paralympic Games in Rio. It seems like an outgrowth of corruption problems in Brazil. Actually, it might be more accurate to say that the Paralympics are going to suffer as a side effect of some possibly just and noble efforts within Brazil to crack down on corruption. I want the Paralympics to be fully funded, but I'm not sure it would be good for Brazil if this happens through personal intervention from Mayors and Interim Presidents who are themselves under scrutiny for corruption. At any rate, the pros and cons of that are up to Brazilians.

More importantly, all this is only to address a funding shortfall that seems to have been caused by poor ticket sales. Is this the same shortfall we've seen in just about every Olympic event in Rio so far, held in quarter-to-half empty venues? Or, is it worse because even fewer people want to buy tickets to see Paralympic events?

If that's the case, why exactly? Is it the obvious answer ... that non-disabled people generally don't think of Paralympics sports as "real" in the way Olympic Track & Field and Swimming are? If that’s the case, I’ve got to wonder after watching BMX racing, golf, and ping-pong presented as “regular” Olympic sports. Are Paralympics considered "lesser" events? How well do most people even understand what the Paralympics are? I am an active part of the disability community, but last time I wrote about the Paralympics I got comments that showed me how little actually I knew about them.

We'll see how the events actually play out next month. Maybe it will be really cool. Maybe the publicity about budget shortfalls and cutbacks will raise interest in the Paralympics. Maybe some private benefactors will step up at the last minute.

In the meantime, it seems like the main takeaway is that once again, when things get hard and choices have to be made, the disability-related thing is left with the fuzzy end of the lollipop.

Maybe a merger IS the answer.

Election Activities Update

Red white and blue Election 2016 sign

It’s time for another recap of what I’ve been doing around disability and the U.S. Elections, and what to expect between now and Election Day.

Blogging

Early in July, Stephanie Woodward, who does advocacy and supervises the election blogging at the Center for Disability Rights asked me and Emily Munson to compare notes on the Democratic and Republican party platforms, and write a joint post giving our perspectives on both as a Democrat (me), and a Republican (Emily). I think both of us were excited about it, but we found it surprisingly tricky. It’s not because we clashed politically, but more because collaborating at a distance, and with different schedules, is difficult. That said, I think we’re both happy with the result. It’s a bit longer than the usual blog, but probably worth a few extra minutes to read:

Emily & Andrew Discuss The Party Platforms
July 28, 2016

Between the Conventions and the more intense Fall campaign season, I decided to do a pair of blog posts in which I ask questions I am dying to ask the candidates, Donald Trump and Hillary Clinton … or that I wish someone would ask them in a public way that might actually force them to answer. Here’s the first one:

Asking Donald Trump
August 11, 2016

I’m not sure whether the dream thing works, but now that I’ve started it, I’ll probably stick with it for my next CDR blog post, “Asking Hillary Clinton.”

In case you missed my earlier CDR blog posts click here to see them.

#CripTheVote

#CripTheVote logo, spelled out in rainbow colored letters, with icon of a ballot box with four disability symbols on the front

I don’t remember if I’ve said it here before, but let me say it now … #CripTheVote is the single most satisfying disability-related project I’ve ever been involved with. It’s hard to say exactly what the “outcomes” of it will be, but for once, I’m not too worried about it. It really feels like the process itself is its own reward. I have learned so much, and my thinking about disability in politics has evolved at triple speed since starting this project with Alice Wong and Gregg Beratan. It’s been an incredibly exiting and productive 7 months, and we’re now in the home stretch, so to speak, with Election Day in sight.

We have settled on a slate of activities between now and November 8. You can read all about it on Alice Wong’s Disability Visibility Project website, and the schedule of events is below:

#CripTheVote Events Sept-Nov 2016
Alice Wong, Disability Visibility Project - August 17, 2016

Sep 19, 7 pm EST: Twitter chat
Political participation and first-time voters
Guest hosts Rock The Vote and the American Association of People with Disabilities.

Sep 26, 9 pm EST: Live-tweet
First Presidential Debate

Sep 27, 5 pm EST: Twitter chat
Media Representation of Disability in 2016 Election
Guest host Rooted in Rights.

Oct 4, 9 pm EST: Live-Tweet
Vice-Presidential Debate

Oct 9, 9 pm EST: Live-Tweet
Second Presidential Debate

Oct 13, 8 pm EST:  Twitter chat
Poverty, Public Programs, and Economic Self-Sufficiency

Oct 19, 9 pm EST: Live-Tweet
Third Presidential Debate

Oct 22, 8 pm EST: Twitter chat
Congressional, State, & Local Elections

November 8, 8 pm EST: Live-Tweet
Election Day!!!

If you are still not sure what #CripTheVote is or how it works, here are some links to get you started:

Accessing The College Experience

Photo of a green highway-type sign with white letters reading "College Just Ahead", in front of a partly cloudy sky background

It’s just about college starting time, so I am sharing two very different videos that have me thinking back to when I started college.

The first is an advice video by Robyn Lambird, for disabled people getting ready to go to college:

This is all excellent advice. I'm not even sure I would add anything to Robyn's five points. Anything more would be either general life advice, or the thick weeds of self-advocacy strategy and tactics ... which would really require several more videos. This is a great start for anyone with a disability getting ready to go to college.

The next video I think calls for something like a “Privilege Warning,” because I’m going to talk about accessibility of a very elite and exclusive college experience. You’ll either find the video charming or disgusting, probably based on your view of the relative nature of social privilege and top-dollar private colleges.

This is a video about Freshman Trips at Dartmouth College, which is where I graduated. A friend of my mother’s brought her daughter to visit Dartmouth back in the Spring, and I drove over to have lunch with them. Going back to visit Dartmouth always makes me nostalgic. Dartmouth is really good at doing that, and it’s entirely deliberate. It all starts with those Freshman Trips … a variety of hiking, biking, canoeing, and other outdoor activities organized by the Dartmouth Outing Club. The idea is to initiate, (indoctrinate?), incoming Freshmen to the Dartmouth culture, and bond them as a class, while introducing them to the natural beauty of New Hampshire that surrounds Dartmouth.

My connection to Freshman Trips at Dartmouth is complicated. I signed up to go on a beginner-level hike, which seemed at the time like the only physically feasible option for me. As I have written about before though, I got very sick a few weeks before starting Dartmouth, and so acute illness prevented me from going on a trip. So, I missed this pivotal bonding experience, in a way because of my disabilities, in a way not. I would have missed it still, even if it was Measles or Mono or something like that. However, it seems pretty obvious to me now that the trip might have been a disaster anyway. There were no adaptations planned, and I don’t know what they could have done to accommodate me even if I had asked. I do remember that some arrangements were made for me to join in the final evening’s activities at the Moosilauke Ravine Lodge, so at least some people there knew that being included would be important for me. I don’t recall exactly why I didn’t end up going even to that event, but it was probably health related. As I said, I was dealing with a mix of my underlying disabilities and acute illness nobody could really do anything about. Sometimes, when you’re sick, you’re just plain sick.

Watching this video now, I wonder whether the Freshman Trips at Dartmouth today accommodate students with disabilities. The campus is much more accessible today than it was when I was there in the late ‘80s, so it seems reasonable that there are mechanisms to ensure that the full Freshman Trip experience is accessible to disabled students. But I don’t see any evidence of this in the video. Although Dartmouth is, by some measures, one of the more conservative of the stodgy, elitist Ivy League colleges, the actual, on-campus culture includes a strong interest in social justice. Of course, as we all know, politically progressive cultures don’t always have a clue about disability rights. It's equally possible I would find the current arrangements really impressive, or completely unchanged 31 years later.

I should probably send an email to the Alumni Magazine or something and ask about it. In fact, I am curious now about all sorts of things having to do with disability at Dartmouth. Despite missing out on a few things, my experience as a disabled student at Dartmouth was very positive. As I think I have mentioned in this blog before, at the time, Dartmouth dealt with disability mostly on an ad hoc, accommodative basis. There wasn’t much accessibility and consideration of rights built into the system yet, but the general attitude of the administration and faculty was to be responsive to student’s needs. That fits with the overall culture of Dartmouth. They are very selective about who they admit, but once you’re in, they want you to succeed and will do a lot to see that it happens.

I wonder how much of that has changed, and if it is all for the better. My worry is that there may be more institutionalized supports and recognition of rights, but also more bureaucracy defensiveness surrounding it.

I’m definitely going to try to find out.

I Used To Think ...

I have decided to start another new series of related Disability Thinking Posts. First, I'm going to finish the last one I started ... the one about Three Threats To Disabled People Today. But then I'm going to start a series called "I Used To Think ..."

Each edition will be about a specific way my thinking about disability has changed over my lifetime. For example, I might write posts about changes in how I think about:

- Disability language and terminology
- Disability awareness
- Advocacy strategies
- The nature of ableism
- What "successful" life with a disability looks like

I'll definitely cover these topics, but probably others too. The series could go on indefinitely.

How has your thinking about disability changed in your lifetime? Feel free to share in the Comments, now or when you see an "I Used To Think ..." post.

Weekly Reading List

Illustration of two shelves of multicolored books

It felt like a back to basics week ...

Ableism on the Left
kpagination, Paginated Thoughts - August 13, 2016

Liberals and disability rights: Why don't they 'get it'?
Mary Johnson, Ragged Edge Magazine - January 26, 2004

It’s possible to overstate the idea that progressive movements don’t understand or respect disability rights. It can often seem like there’s not much difference between the Left and the Right on disability issues. That’s not true. There are fundamentals in play that make the Left a more logical home for disability activism. But that’s exactly the reason why it’s so perplexing and vexing that it isn’t a better home than it is. These two articles … one brand new and one two-part older piece … give a valuable overview on what the problems are, and why disability activists sometimes spend more time complaining about the Left than the Right.

Disabled woman turned away from disability assessment centre because she couldn’t use stairs
Harry Cockburn, Independent - August 12, 2016

This sounds like a made-up parody of ableism and accessibility problems. It’s not a parody. It’s real, and fairly common, if not typical. There’s a reason why people still use the phrase “Kafkaesque.”

This woman was thrown out of a Brighton pub ‘for being disabled’
Miranda deLarbi, Metro.uk - August 10, 2016

Ableism is as much about deep-seated dislike of “weird people” as it is about bureaucratic neglect of physical accessibility. Most disabled people are “weird” in some way, and people feel justified in excluding is for that reason, even when they agree that deliberate disability discrimination is wrong.

On Vulnerability as a Disabled Person
Carrie, Autostradale - August 8, 2016

I relate to so much about this. Internalized ableism is strong. Becoming aware of it and dismantling it is powerful.

Personal Responsibility
Mike Ervin, Smart Ass Cripple - August 10, 2016

Haven’t we all fantasized about taking accessibility into our own hands … doing a little vigilante access modification? I certainly have, but I never thought about connecting this implausible but delightful thought with the fundamentally conservative idea of “personal responsibility.” As usual, Smart Ass Cripple crafts a hilarious “bit” out of a profound truth.

Disability Blogger Link-Up

Time for a late summer Disability Blogger Link-Up. Grab a cool drink, put the Olympics on in the background, and get ready for some great disability reading.

If you are new to this, click here to see previous Disability Blogger Link-Ups.

As always, to make the links easier for visitors to browse, in the “Your name” blank, please type the title of the article you are posting. In the "Your URL" blank, paste the URL address of the item. Like this:

Name = Title of your article.
Your URL = Link to your article.

Then click the "Enter" button. That's it!

This Link-Up will close at Midnight Eastern on Sunday. The next Disability Blogger Link-Up will start Friday, August 26, 2016.

Petition

I’ve been too busy today to write a longer post, so it’s a good opportunity to share a worthwhile petition. It’s asking the President, (I’m not sure why, but whatever), and the U.S. Patent Office to cancel the trademarking of the term “Invisible Disabilities,” which a nonprofit organization got for itself and is actively stopping anyone else from using.

As this Daily Dot article points out … and should be obvious anyway … “invisible disabilities” is a generic term widely used for a very long time to categorize various disabilities that aren’t apparent to others. This organization, the Invisible Disabilities Association, is basically meant to address the concerns of people with invisible disabilities, so they’re more or less on topic. The problem is that they are trying to claim ownership of a widely used descriptive term that is also viewed by many people to be an identity … something like an ethnicity. Either way, it’s ludicrous and ungenerous, and they certainly didn’t creatively come up with the term, so I have no idea how or why the Patent Office allowed the trademark to go through.

At some later date I might have more to say about the organization itself, which also happens to have a rhetorical style that I find a bit creepy and off-putting. I there may be structural and philosophical reasons for that, but I want to explore the role sentimentality in disability discourse. Is the sweetness and cheerleading approach wrong, or is it just a different cultural and emotional perspective on disability that I personally don’t like?