10th Blog Anniversary

Large blue and white letters reading 10th ANNIVERSARY

Ten years ago today, I published my first Disability Thinking blog post. I haven’t been blogging regularly for a few years now. But I think of my Disability Thinking Monthly newsletter, and the writing I do for Forbes.com and other publications as extensions of the blog writing on disability experiences, issues, and culture I started back in February 2013.

This year I plan to go back and look at old blog posts to see what holds up, what doesn’t, and what might deserve some kind of an update.

3 Weekly Disability Reads

LINKS spelled out in blue computer keyboard keys

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

March 28 - April 4, 2021

1. Overlooked No More: Kitty Cone, Trailblazer of the Disability Rights Movement
Wendy Lu, New York Times - March 26, 2021

We tend to hear about a small handful of activists in disability history, and rightfully so. But it’s also good the some of the gaps are being filled in, and some of the other key people being recognized.

2. Physicians’ biases, lack of knowledge, partly to blame for health care disparities among people with disabilities
Elizabeth Heubeck, The CT Mirror - March 22, 2021

I really hope we are getting to a point where the major professions can start dealing seriously with institutional ableism without taking the whole issue personally and defensively.

3. Med Student's Disability Helps Him Connect With Patients
Nick Romanenko, Rutgers Today - March 22, 2021

We need to learn more about whether and how doctors, nurses, and other medical professionals with disabilities can help deliver better medical care to disabled patients.

3 Weekly Disability Reads

LINKS spelled out in blue computer keyboard keys

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

March 7-14, 2021

1. Q&A with Ingrid Tischer
Alice Wong, Disability Visibility Project - March 6, 2021

A compelling personal account of the kinds of struggles disabled people face as they try to get quality medical care while avoiding or confronting medical ableism.

2. 'Comedy is a wall breaker' for letting people with disabilities be themselves
Connie Gurlielmo, C|NET - March 8, 2021

Shannon DeVido talks about how comedy can help us talk about disability, and about the continuing need for more disability representation in popular culture.

3. I Refer to Myself as Disabled, Because My Disability Is Central to Who I Am
Erica Mones, PopSugar - March 9, 2021

An important exploration of disability terminology, and how our word choices can both reflect and shape how we understand ourselves and our disabilities.

3 Weekly Disability Reads

LINKS spelled out in blue computer keyboard keys

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

February 14-21, 2021

1. You Don’t Have to Be a Superhero
Brady Gerber, Vulture - February 17, 2021

This is the best overview of how autism has been depicted in popular culture, from Rain Man, through Sheldon Cooper, to the small boom in more sophisticated portrayals on network and streaming TV. It seems that autistic characters have both reflected and shaped the evolution of general understanding of autism. And fortunately, with notable exceptions of course, they seem to be getting better.

2. Smart Ass Cripple: My Bad Case Of Vaccination Envy
Mike Ervin, The Progressive - February 17, 2021

I pretty much feel the same way as Smart Ass Cripple about disability and COVID vaccine access. While I agree in principle that that setting priorities and delaying access to some people is justified, I think a hell of a lot of disabled and chronically ill people, specifically, are being wrongly overlooked. I’ve got an vaccination appointment set for April, and I can handle the wait. But it still feels wrong somehow that I and people like me didn’t get access earlier.

3. U.S. Election Assistance Commission Releases Study On Disability And Voting Accessibility In The 2020 Elections
U.S. Election Assistance Commission - February 17, 2021

I won’t be the only one combing through these findings about voting access trends. Research like this is incredibly important. I hope it continues and expands in future elections.

Blog Birthday!

8th blog birthday in bold white letters on a background photo of a chocolate cake piece with orange sprinkles and eight lit candles on top

Eight years ago today, I published the first post on my Disability Thinking Blog. It was only a “Test Post” to make sure I had the blog set up right. The first real post came the next day, about Oscar Pistorius. Remember him? Eight years later and I’m still not sure whether it’s better to remember disabled people like him or forget them.

Disability Thinking is a lot less bloggy than it used to be. Now it’s mostly a place for me to park stuff I write for other publications. But I recently started doing mostly weekly lists of disability-related articles to read. And who knows, I might get back to some other semi-regular blogging this year.

Eight years is a much longer time than it feels.

3 Weekly Disability Reads

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

January 18-24, 2020

1. I’m a Disability Activist Because I Have to Be, But Not Always Because I Want to Be
Shona Louise, Rooted In Rights - January 19, 2021

Disability activism can be exciting, empowering, and fulfilling. But most activists wouldn’t choose to be activists if they didn’t have to in order to survive and thrive. “Activism is not a hobby for a disabled person like me; activism is the only way I can access the world and live the life I want.”

2. ‘Breaking Bad’ and the Legacy of Disabled Representation in Peak TV
Kristen Lopez, IndieWire - January 21, 2021

This newest installment in Kristen Lopez’s series of articles on disability in TV and film provides another perspective on what it means to be a disabled activist or role model.

3. Music review – Sia’s controversial film about autism lacks coherence and authenticity

Luke Buckmaster, The Guardian - January 19, 2021

Buckmaster doesn’t like Sia’s film, and part of the reason is her controversial casting decisions, which not only failed the test of representation, but apparently failed the film itself. But it’s not the only reason he doesn’t like “Music,” and the reviewer even highlights things he does like about it. This is the first film review I have seen that both recognizes the growing concern about casting non-disabled actors to play disabled roles, and puts the issue in balanced context.

3 Weekly Disability Reads

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

January 11-17, 2020

1. Interview: Julia Bascom
Neurodiversity News - January 7, 2021

A very personal, in-depth, and accessible look at neurodiversity and what it really means in the world of autism, and to some extent with other disabilities. From @JustStimming.

2. 'More visibility is needed': Pennsylvania state rep one of few with autism
Meghan Holohan, Today, January 15, 2021

A newly-elected autistic state legislator shares their perspectives on running for office and what’s ahead once elected.

3. 18 Books That Will Help You Better Understand Disability And Chronic Illness
Margaret Kingsbury, BuzzFeed News - January 14, 2021

It’s always helpful to find another good disability reading list.

3 Weekly Disability Reads

Most Sundays, I post links to three things about disability that I read, heard, or viewed over the previous week, with a few notes of my own added.

January 4-10, 2020

1. This Is Why Nursing Homes Failed So Badly
E. Tammy Kim, New York Times - December 31, 2020

“The awful truth is that long-term care was designed to fail years before Covid-19.”

In disability activism, we often find ourselves saying, “We told you so!” It must sound like a kind of grim satisfaction. We’ve been saying nursing homes and other kinds of congregate care for the elderly and disabled are terrible – to be avoided or even abolished. Now the pandemic is proving it. But it gives us no satisfaction. It gives us cold terror.

But we really did tell you so.

2. Covid Spurs Families to Shun Nursing Homes, a Shift That Appears Long Lasting
Anna Wilde Mathews and Tom McGinty, Wall Street Journal - December 21, 2020

It’s interesting to see how news coverage of the COVID-19 pandemic reports things that are obvious to much of the the disability community, portrayed as new and revelatory. It’s accurate though. While the move away from nursing homes and other congregate care and towards home and community based services has been happening for decades, it’s not yet a popular trend visible to most people who aren’t deeply involved in the issue. Let’s hope this Wall Street Journal article is right and the move away from congregate care is real and durable – not just a longstanding disability activism goal.

3. Handicap accessible ramps in high demand to keep elderly, disabled in their homes and out of assisted living
Michael Paluska, WFTS Tampa Bay - July 22, 2020

The message here is a little mixed and confused, and the story is local to Tampa Bay, Florida. But the overall point I think is clear. The people in the article aren’t all that clear about the connection between the COVID-19 pandemic and ramps to make homes more accessible. One woman seems to be saying that her ramp allows her to go out during the pandemic when otherwise she’d have to stay home. On the surface that seems like it could be as harmful as helpful, since staying home in a pandemic is in some ways a positive. But I think the broader point is that accessibility overall in the home helps put off or prevent the need for institutional care, and institutions like nursing homes and “assisted living facilities” are breeding grounds for COVID-19 infection and death, as the first two articles illustrate.

January 6, 2021

I posted this on my Facebook page earlier today, about yesterday’s events in Washington, DC

===============

I didn’t post anything during yesterday’s events because:

1. I was too stressed out by it all, and

2. I wanted to process a bit before adding my own words to stuff others were already saying.

I still don’t know what to say that hasn’t already been said quite well. I’ll just share this.

Yesterday afternoon I watched Sen. McConnell’s speech refusing to go along with objections to Electoral votes, felt a bit relieved, and turned it off because my grocery delivery had come. I listened to a favorite podcast while I sorted and put away my groceries. Then I looked at Twitter and everything had changed. Not really everything had changed of course ... that’s probably going to be part of the point. But you know what I mean. One minute it’s THIS, the next minute it’s THAT.

I could make lots of observations about:

  • The fragility of democracy ...

  • How we ALL both over and underestimated Trump ...

  • How the Capitol Police were deployed and performed yesterday vs. during the Black Lives Matter protests earlier in 2020 ...

  • How the Capitol Police were deployed and performed yesterday vs. when disabled protesters demonstrated to protect Medicaid and the ACA in 2017 ...

  • Whether we need technical reforms in the transition process ...

  • DC statehood ...

  • How much of Trumpism is cynical and how much is sincere, (and how much that does or doesn’t matter) ...

  • The differences between defensible protest and indefensible insurrection ...

But I’ll leave it at that for now. Stay safe everyone. Get some rest. Pay attention, but try to relax a little too.

3 Weekly Disability Reads

Every Sunday I post links to three things about disability that I read, heard, or viewed over the previous week, with some notes of my own added.

December 14-20, 2020

1. As Hospitals Fear Being Overwhelmed By COVID-19, Do The Disabled Get The Same Access?
Joseph Shapiro, National Public Radio - December 14, 2020

This is tough to read and listen to, but it’s essential. The number one specific fear among people with disabilities during this whole pandemic is being deliberately denied treatment for COVID-19 because of our disabilities, through emergency “triage” measures instituted by overwhelmed hospitals. And while some progress was made a few months ago on getting these kinds of measures ruled discriminatory and illegal, not everyone has gotten the memo. Now hospitals are again facing the kind of overcrowding that triggers these measures. What this article and radio story by veteran disability reporter Joe Shapiro does is give policies and practices that survive through carefully-tended anonymity a real face and a real life. It also demonstrates exactly how disability in the medical field actually occurs – the actual words people say and the ideas about disability those words reflect. It’s shocking but, sadly, not entirely surprising to anyone who has experienced any sort of ableism.

2. Four Months That Left 54,000 Dead From COVID in Long-Term Care
David Hochman, AARP - December 3, 2020

It’s a real breakthrough for a prominent, mainstream aging organization like the AARP to come out so decisively against the the very existence of nursing homes. It’s one thing to criticize a few specific facilities and their operating corporations for especially egregious abuse. It’s quite another to note that while bad decisions at all levels have made the pandemic worse in these places, it’s the nursing home model itself that is the core of the problem. Abolition of nursing homes probably isn’t feasible in the foreseeable future. But a strong move away from them is quite possible, by everyone involved including families, the medical and social service communities, and elderly and disabled people themselves. The disability community has been out ahead on this issue for decades. It’s a hopeful sign if the AARP is starting to catch up. Now if we could get stronger statements like this from the large, prominent developmental disability organizations against group homes and larger institutions – and the same from the mental health profession about their congregate care models – we’d really be making some progress.

3. How We Can All Celebrate the International Day of Persons With Disabilities
Madison Lawson, Allure - December 3, 2020

It’s good to see a “mainstream” magazine, (not disability specific), publish a disabled writer well matched with its core audience talking specifically about how to learn about disability issues and culture through social media. Sending newcomers to Twitter, Instagram, Facebook, and YouTube to learn more about disability may seem risky these days, but these platforms mostly do okay on disability matters, at least so far.