As promised in the episode, here is the original comment Tweet from Amanda, and the video comments she posted a couple of days later. The video, in particular, explains her concerns in more detail.
Wow what an ableist podcast. http://t.co/cQIcQaQ7PL #ableismis saying that you understand ASD as a punchline because we're so "bizarre"
— AmandaMills (@NaturentheCity) November 16, 2014
Disability.TV Podcast Direction Survey at SurveyMonkey.com.
I have made 964 posts, this one included, with at least one post pretty much every day.
I have build some sort of regular audience. The blog has over 63,800 total “hits”. That's not a spectacular number, but I am happy with the current rate of around 200 hits per day. Aslo, Disability Thinking has been visited by people from 76 countries, including the United States, with really substantial traffic from Canada, the United Kingdom, and Australia.
I finally started the Disability.TV Podcast, and it is coming along slowly but surely.
It seems like a good time to brainstorm a To-Do List of blog topics I feel I have neglected. For instance:
Faith / Religion and Disability
Practical Ideas for Independent Living
Relationships / Sex
I have one more topic in mind that's hard to describe in one line. Basically, it is self-critique … both of my own approach and thinking about disability, and how the disability community as a whole deals with disability. For good reason, disability blogs spend a lot of time explaining and promoting disability-centered approaches to the subject to the wider world. That is important because most people have an entry-level understanding of disability issues, at best. Yet, there are aspects of my own thinking that could use some revision. And there are habits and modes of thinking that are popular in disability culture that I don’t entirely buy into. I hope to deal with this in some way over the coming months. The trick is to do it without undermining support for the disability community, or simply repeating ableist stereotypes.
As always, I welcome comments and suggestions!
"I've had a power wheelchair for years after having used a scooter most of my life. I definitely like the wheelchair better by comparison, but I would shy away from attributing real emotion to assistive technology. It's great thing it's available, but I view it as a tool. Hope others chime in.” — Rob J. Quinn, I’m Not Here To Inspire You
"I am coming to terms with my new limits and getting used to the cane, and very very slowly coming to terms with the idea of using a chair and reclaiming my life. The process has been incredibly hard. Fucking pride man… and like this long standing idea that if you can walk, you shouldn’t use a chair.” — Tattered Obsidian
"I make my wheelchair a fashion statement. It’s my best accessory. It’s my lifeline to independence - without it, I’ll be so dependent. Plus… I use it to get the hot guys to notice me. ~ V :)” — Vilissa Thompson, Ramp You Voice!
"We don't have a lot of specialized equipment for our 18yo daughter with moderate cerebral palsy any more. There were days when our whole house was overflowing with special cups, scissors, pencils, leg braces, hand splints, bulky seating equipment, huge car seats, bath chairs, nesting benches, switch toys, and over-sized exercise balls. There are still things that aren't typical for an 18yo - sports cups instead of glasses, a bib loaded with paper towels to soak up spills, a retractable badge hanging from her belt with a washcloth to wipe her mouth, a basic bath chair available at any drugstore. But, I have to say, it's nice to have less special stuff and less clutter. Don't get me wrong, I actually do love what we have, but only because they serve a necessary purpose.” — Kerith Stull, Brielle and Me
"My son when he was younger use to use a walker but when he started Kindergarten he began to use arm-band crutches. He has Arthrogryposis but it only effects his lower part of his body. He has very little muscle in his lower limbs. We keep an older set at the top of our stairs so he doesn't have to crawl around. We've had to purchase 4 so far. We can adjust them as he grows but it only goes to a certain height. The problem we have come across is the rubber bottom part of the crutches wear out quickly and aren't easy to find. We try to buy extra so we have them on hand. I tried to find a place locally that we could donate some of his leg and body braces from when he was younger but I guess it's a liability to use used equipment. We do have a wheelchair as well for when h e's had surgeries or when he breaks a bone, which he does often because he has brittle bones. But we pay a monthly rental fee for it. Our goal has always been to make easy and as normal for him around the house. He's now 9 years old and is pretty strong!” — Mari Blair
"What does a definition do? It explains what a word is. If someone were to explain who I am, give a definition of me, my disability would only be part of it. A disability does not make a person, they are much more than what they "have" and how they get around. As a disabled person I do not let my disability define me. To me that means that I am more than just someone who happens to use a wheelchair to get around. When I meet someone new our "get to know you" conversation doesn't center around my medical history. My life and thoughts do not revolve around being disabled. Being disabled is part of me, I fully acknowledge that, but it's not all of me.”
"My problem with the words we use to talk about anyone, disabled or able bodied is that they are the perception of others who may or may not have an appreciation for the full human being. You've said it here, Andrew, when people talk to us, we have interests beyond our disabilities to share. Sometimes people have a hard time getting past whatever the body barrier is that exists. I actually think that very attractive people have some issues in this area. People are awed enough to keep themselves distant. People with tattoos scare some people. In the case of disabilities, people may feel awkward or scared and they keep distant. To be able to have a full sense of who I am, you have to be brave enough to dare to approach me and then look me in the eyes, not focusing on my wheelchair.”
"... Lets try that again and change the words around
Ex. “I’m a girl but I don’t let that define me! I like video games and sports. I don’t wear makeup and dress in casual clothes. I don’t diet or obsess about my appearance. I’m just one of the guys!”And more from Posts and Mirrors:
" ... There are parts of me that my disability has less to do with, but it’s such a pervasive part of my life that it touches on basically everything. I don’t get the option of ‘rising above’ or ‘conquering’ my disability, and I don’t prefer to spend my life unhappy about that fact. There are times I still rail against it, but mostly I work at learning how to accept the definition that is unavoidable and how to work with that to have the life I want."