Disability Blogger Link-Up

Hot enough for ya? Take a moment in the shade with this weekend’s Disability Blogger Linkup!

If you’re new here, the idea is to collect lots of really good, interesting pieces of writing on disability topics, for the most part by people with disabilities. I post a linkup every other weekend, and each runs from late morning on Friday and closes at Midnight on Sunday. Once a linkup is closed, you can’t post to it anymore, but the links all stay active, essentially forever. If you miss one linkup, there will be a new one in a couple of weeks.

If you like, browse all the past Disability Blogger Link-Ups here.

As always, to make the links easier for visitors to browse, in the “Your name” blank, please type the title of the article you are posting. In the "Your URL" blank, paste the URL address of the item. Like this:

Name = Title of your article.
Your URL = Link to your article.

Then click the "Enter" button. That's it!

This Link-Up will close at Midnight Eastern on Sunday. The next Disability Blogger Link-Up will start Friday, July 29, 2016.

Throwback Thursday

Three years ago in Disability Thinking: The Zimmerman Verdict and Ableism
July 14, 2013

Holy cow! My naïveté on whether ableism can lead to police killing disabled people is stunning and embarrassing. That was only three years ago. However, I still think the rest of my analysis holds. One way or another, it boils down to the fact that disabled people are allowed a much narrower range of behaviors and reactions that are considered “normal.” Most often, this leads to fairly ordinary kinds of personal conflicts and annoyances, but in certain situations it can lead to much bigger consequences, including death. I’m not suggesting we should adopt a siege mentality. Just that we should never forget that some of us have less compensating social privilege to shield us, and that it doesn’t really take much for any of us to be in real danger, often when we can’t reasonably anticipate it.

Two years ago in Disability Thinking: “Freakshow” Trailer
July 14, 2014

American Horror Story: Freakshow turned out to be kind of a dud, in my opinion. It had some good things going for it, from a disability standpoint. But it also had a ton of plain exploitation and ridiculous disability camp. Ultimately, it was kind of a wash in terms of positive or negative disability depiction, because the show overall wasn’t very good … even in comparison with other American Horror Story seasons … so it had little impact, good or bad. The video I embedded two years ago isn’t active anymore, so I’ll embed another here, so you can get a taste of why for a short while, the show was a hot and divisive topic in Disability Culture. Also, check out the Disability.TV Podcast episode on AHS: Freakshow.

One year ago in Disability Thinking: It’s Refreshing
July 14, 2015

I have two notes to add. First, the article I originally linked specifically talks about ADA lawsuits, and does so approvingly, which is rare. Usually news coverage of ADA lawsuits assumes that most of them are frivolous, pushed by greedy lawyers and unhinged lone-wolf activists. Mr. Pfeffer offers here a strong defense of lawsuits as essential for making the ADA work. Second, while we should still value occasional validating pieces like this by non-disabled writers, we should also acknowledge that there’s something rather galling about the fact that non-disabled writers about disability still are granted more credibility than actual disabled people writing about disability. It’s another sign of how deeply ableism is woven into the public consciousness.

Election Blogging Update

As I have previously noted, I am mostly saving my election-related writing for #CripTheVote and paid blogging for the Center for Disability Rights. Every so often, though, I will post a little update on these activities here at Disability Thinking.

I recently did two more blog posts on politics, disability, and the U.S. elections for the CDR website:

On Mass Shootings and Mental Disability
June 17, 2016

The Ugly Side of Disability Rhetoric
July 12, 2016

I will also write posts after the upcoming Republican and Democratic conventions, and I plan to continue blogging through Election Day in November. If you want to read more of my thinking on the U.S. elections, check out #CripTheVote on Twitter and the #CripTheVote Facebook Page. You can also read my past CDR election blog posts, listed here:

June, 2016

Top 5 Disability Issues
(Paired with this blog post by Emily Munson)
Five Modest Proposals

May, 2016

Nothing But Questions

April, 2016

Undecided: 9th Democratic Presidential Debate

March, 2016

Now Let's Hear From The Rest Of Them

A Bit Of Republican Tone Policing: 12th Republican Presidential Debate

Deepish Thoughts From A Contentious Debate: 8th Democratic Presidential Debate

Just Stop It: 7th Democratic Presidential Debate

Moderators Please! Ask A Disability Question!: 11th Republican Presidential Debate

February, 2016

I Guess We're On Our Own - 10th Republican Debate

No Time For Disability - 9th Republican Debate

It's Time To Do Better - 6th Democratic Debate

The 8th Republican Debate

Bad Conflict, Good Conflict - 5th Democratic Debate

A Real Disability Issue, But Is Anyone Listening? - 7th Republican Debate

January, 2016

Shoot For The Moon, Or Play It Safe - 4th Democratic Debate

Blowing On Sparks - 6th Republican Debate

Passing A Low Bar: Hillary Clinton Answers a Disability Question

December, 2015

The Full Plate and The Missing Topic - 3rd Democratic Debate

Safety At All Costs - 5th Republican Debate

Mocking Trump

Disappointing, But Not A Waste Of Time - 2nd Democratic Debate

November, 2015

It’s Up To Us - The 4th Republican Debate

October, 2015

And How Will That Work For Disabled People? The 3rd Republican Debate

Quitting The Podcast ... For Now

I am putting an end to the Disability.TV Podcast in its current form, but something will take its place, and what’s already been done won’t go away.

I still believe there is a huge and mostly untapped potential for audio podcasts in Disability Culture. There are just enough really good disability podcasts out there to make me certain there could and should be more. However, in the three years since I started Disability.TV, I have concluded that I'm not very good at it, especially when I go solo, and right now I don't have the time and resources to line up sufficient guests. So I'm going to stop this cycle of excitement about a new disability on TV topic, procrastination about actually doing a show about it, and relief at finally doing it, followed by slight disappointment over the results. I gave it a decent shot. I like a lot of what I and my guests dis. But it's time to move on to something different.

What next then?

For awhile, nothing. I've got enough going on with the blog, the freelance work I'm doing this summer, and my daily #CripTheVote activities. Eventually though, I have in mind a more general-interest disability video show or "vlog" on YouTube. I say "general-interest," but I probably mean topics clustered around disability activism, politics, and culture ... much like the written Disability Thinking blog. It will probably once again be a combination of short solo entries and somewhat longer conversations with others. I might even do a few on-location vlogs when there's something interesting to look at.

In the meantime, I will keep the podcast alive so you can listen to it anytime you want. Occasionally, I'll even promote some of the through the Disability Thinking blog, Twitter, and Facebook. And whatever comes next will take its place exactly where the podcast resides on the Disability Thinking website. So stay tuned. If there are particular things you'd like to hear and see, format preferences, or other ideas, please do let me know!

By the way, don't forget that the Disability Thinking Links page includes links to my favorite disability-related podcasts and vlogs. Go visit, and check back now and then, to see what great stuff other people are doing in disability media and commentary.

Three Threats: 1. Populist Backlash

Danger sign, white block letters inside horizontal red oval, surrounded by black rectangular background

From my July 6, 2016 blog post:

“Over the next few days, I plan on writing a series of posts about what I believe to be three of the most dangerous and imminent threats to disabled people in America today. By "threats" I don't mean garden-variety injustices, or everyday ableism ... even though some days they seem to eat away at our souls. I'm talking about specific measures or trends that threaten our actual survival. And by "survival," I mean our economic viability, our physical and psychological independence, and our lives and safety.”

***

Let's start with Populist Backlash.

In this particular election year, it seems right to start with Populist Backlash. Since the term is made up of two distinct words, I’ll start by trying to define them.

Stock photo of a middle aged white bald man with beard and mustache, looking very angry, pointing an accusing finger at the viewer

“Backlash” is a reaction against recent social changes. It is inherently conservative, (Keep things the way they are!), and often reactionary, (Go back to the way things were!). Some people join in backlash because they have always opposed social change. Others get revved up when they feel that social change has “gone too far,” or when social change previously thought to be essentially harmless suddenly seems to threaten the majority’s status and equilibrium.

The word “Populist” implies a movement coming from the “lower” levels of society, rather than elites. Populism can be positive or negative, but in the American political context the term carries a negative connotation, because so much American “populism” has included explicit racism, anti-semitism, and other kinds of scapegoating … blaming other low-status groups for your problems instead of the systems and leaders who are actually responsible.

So, “Populist Backlash” is a movement against resented social change, by people who are themselves of relatively low status, who suffer real or perceived losses of status and privilege, and who vent their frustrations on other low-status or minority groups. It’s important to note, too, that while Populist Backlash doesn’t come from elites, it is very often co-opted and used by elites for their own purposes.

How does this relate to disabled people?

Disabled people are more visible, accommodated, and assertive in society than they were decades ago. Fewer of us live in institutions. Still too many do, but far fewer than used to. You see disabled people more often in everyday life, where we used to be almost invisible. Disability issues still don't get the attention they should, but accessibility, inclusion, and simple non-discrimination are at least recognized and more or less permanent priorities. Disabled people have over the last 30-40 years gone from virtual nonentities in society, dealt with only privately by their families and physicians, to permanent, named members of the broader community. That is a big change, even though we sometimes forget it. And how we view ourselves from the inside is different from how others see us.

From the outside, it can appear that disabled people are entitled to many benefits, privileges, and social sympathies that other underprivileged people can’t seem to get for themselves. People are just minimally "aware" enough to know that there are now more laws and programs designed to meet the specific needs of disabled people. Meanwhile there are fewer such arrangements than there used to be to help people who have other kinds of problems, like under-employment, low income, and discrimination. While disabled people have these problems, too, we at least have programs that are supposed to help us with those things. Non-disabled people mostly don't. They used to, but remember that in the United States, generic "welfare" has been mostly dismantled, shattered into dozens of tiny, narrowly targeted programs that are hard to qualify for and full of holes.

We disabled people know, of course, that even our own targeted programs look far better on paper than they do in real life. Our civil rights laws lack practical teeth. Benefits are hard to get and even harder to maintain with any assurance. The better service models we've developed are almost all vastly under-funded and, therefore, minimally and randomly implemented. But this doesn't matter to people who don't know any of this. To them, it looks like we get everything and they get nothing, even though they feel like they have just as many problems and barriers to deal with, if not more. We even get our own damned parking spaces!

Frustration about these supposedly unearned advantages, coupled with the dark allure of disobeying the dictates of “Political Correctness” can lead people to be shockingly nasty and abusive towards people with disabilities. Actually fighting for better policies to address inequality requires coherent, carefully-tended ideologies and lots of wonky knowledge. Lashing out at your "disabled" neighbor who gets a monthly government check for "doing nothing" is easy. Especially if they look and talk weird. Especially when they, (we), do nothing but complain about not having any power or support.

And now, we have savvy politicians telling people that lashing out in this way isn't impolite. It's not gross or hateful. No! It's honest, brave, admirably non-conformist!

So what? This kind of naked hatefulness against disabled people isn't all that common. Disabled people are far from the favorite scapegoat for Populist Backlash. Immigrants, black people, LGBTQ people, and women seem to share that dubious honor. Is this really a big enough problem to be a danger, not just an annoyance or personal trauma? For one thing, lots of disabled people are also black, gay, immigrants, and / or women. So, for many of us, ableism is just one of a half dozen or more active angles of attack we experience every single day. Ableism may not be the worst, but it doesn't have to be.

The other problem is that this close, personal resentment and unleashing of anger can very quickly lead to harmful policies that would affect far more than our feelings. Scapegoating disabled people, even only occasionally, can jump in a second from purely social and rhetorical, to the very concrete. Especially during an election year ... especially THIS election year ... we need to watch out for hate becoming proposals. We need to be wary of cuts to disability benefits or narrowing of eligibility. We need to be on the lookout for attempts to make the ADA even weaker than it already is. We need to worry that giving people permission to use unthinkable language about disability will help unleash unthinkable policies that will harm disabled people.

This happened in the United Kingdom when budget cuts targeted to disabled people were made politically feasible, even politically attractive, partly by amped-up anger at “benefits scroungers.” As a bonus, political validation of the idea may have, in turn, fueled more hate, setting up a frightening, destructive cycle. It hasn't really happened here yet, but it could.

Where does this backlash come from, and why?

Again, the Populist Backlash I am talking about generally comes from poor and working class people, not primarily from so-called elites. Certain elites will harness it, and they are usually the ones to channel resentment into action, but when they do, they are still mainly relying on non-elite sentiment. Most elites are too polite, or too politic, to partake directly.

Although Populist Backlash against disabled people is almost completely based on misinformation and prejudice, it is weaponized by actual suffering, both emotional and material. As already noted, non-elites feel screwed, and in many ways they are. The problem is that it's easier, somehow, to blame other screwed people who look, speak, and act differently, and who are close at hand, than to blame murky, distant corporations, politicians, and obscure policy structures.

A lot of things feed into Populist Backlash, including basic ableism, but it also relies on the idea of scarcity. It's the idea ... the unquestioned assumption really ... that all good things in society are in short supply. When one group "gets," others necessarily "lose." If disabled people are better off, someone else may be suffering. Maybe it's me.

At the moment, Populist Backlash is more of a warning sign than a danger. But we should absolutely view it as a very serious warning sign of a very real danger, not just to our identity or peace of mind, but to our actual lives.

Next in this series: Re-Institutionalization.

Beach Break

This seems like the wrong couple of days to continue writing about threats to disabled people. Not that racially-connected police killings and killing of police make threats to disabled people less important. Just that I feel like it’s a better idea to allow a couple more days before digging again into darker side of ableism when the darker side of racism deserves undivided attention. I’ll pick up the topic again tomorrow.

In the meantime, a Facebook friend of mine has alerted me to an interesting accessibility story I’ll share instead.

A beach in North Carolina is installing “accessibility mats” that make it easier for wheelchairs and people with impaired mobility to navigate sand. It seems like a natural idea to me, and a notch better than those beech wheelchairs, which can only help one person at a time. It puts responsibility onto the facilities rather than on the users, which is of course a bedrock principle of accessibility.

The linked news story includes a video, but it’s not very good, and I’ve found a much better video about the same thing that actually shows how the mats work. I’m embedding it below:

Throwback Thursday

Three years ago in Disability Thinking: My Disabilities

I remember thinking it was harder than I expected to explain my disabilities succinctly but fully. I like how the description turned out though, and I’ve used several times in different situations where I had to explain how my disabilities are for me, day to day. The main difference now is that I have more pain than I did three years ago. It’s not a huge problem, but I kind of have to think about it every day.

Two years ago in Disability Thinking: Disability Visibility Project

The Disability Visibility Project is still going strong, especially the website and Facebook Page. Both are still essential sites for anyone who wants to engage with disability issues and culture. And as you may know, I’ve been involved with the proprietor, Alice Wong, and Gregg Beratan, in the development of #CripTheVote. So far it’s been the most productive, satisfying partnership I’ve ever experienced.

A year ago in Disability Thinking: Stuff That Worries Me

I am tempted to take up again this idea of a series of posts on what worries or bothers me within the disability issues and culture communities. The trick is to be sincere and humble about it, and not let the exercise devolve into tone policing, concern trolling, or any sort of ‘splaining. I think that trickiness is why a year later, this “series” still has only one post.

Three Threats To Disabled People Today

Over the next few days, I plan on writing a series of posts about what I believe to be three of the most dangerous and imminent threats to disabled people in America today.

By "threats" I don't mean garden-variety injustices or everyday ableism ... even though some days they seem to eat away at our very souls. I am referring instead to trends that threaten our actual survival. And by "survival," I mean our economic viability, our physical and psychological independence, or our lives and safety.

There are more just three serious threats of this caliber, but these are the three I've decided to write about first. I can already think of two or three more I could add, and I might do that in another series in a few weeks. For now, here are the three "dangerous and imminent threats" I'm going to look at, starting in a few days:

1. Populist Backlash

2. Re-Institutionalization

3. Legalization of Assisted Suicide

Stay tuned, and feel free to join in with comments.

Looking Ahead To The 2016 Paralympics

The 2016 Summer Paralympic Games will be held in Rio De Janeiro, Brazil in September, a little over two weeks after the Summer Olympic Games in Rio end.

NBC Sports will air 66 hours of Paralympics coverage, a huge increase over the six or so hours of coverage they did during the 2012 Paralympics in London, and a fair amount more than the 50 hours of coverage they broadcast during the 2012 Winter Paralympics in Sochi. I don't get cable TV anymore, so I'm not sure how I'm going to see any of this. I am hoping NBC might sell some short-term access to web coverage or something.

I constantly puzzle over what to make of the Paralympics. My instinct is to prefer it by a very wide margin over the Special Olympics, for a bunch of reasons I hope aren't too ableist. I think I prefer the Paralympics because it's closer to a pure sports competition, while the Special Olympics have the look of athletics, but also a second-tier therapeutic goal that doesn't seem to be there in the Paralympics. Also, the Special Olympics still seems to be mainly a creature of non-disabled families and caregivers, while the Paralympics at least feels like an event run by disabled athletes themselves. While the organizational origins come from rehabilitation, it has long since become just another sports organization, not a an athletic outgrowth of a therapeutic mission.

Both organizations celebrate sportsmanship, cultural exchange, and the inherent honor of athletic effort and participation. But Special Olympics seems to downplay the competition part, while the Paralympics embrace it. From a sports fan perspective, and a disabled person's perspective, (at least this disabled person), that's crucial.

This is where I start to smell the ableism, in the organizations but also in myself. The casual observer would probably say that it's appropriate for Special Olympics to downplay cutthroat competition and instead emphasize joy and participation, because it's mainly for people with intellectual disabilities. The Paralympics, on the other hand, is for people with physical disabilities, who are generally seen as more like "normal" people, apart from their specific impairments, so they're more capable or resilient or something. Nobody wants to see a runner with Down Syndrome in inconsolable tears after losing a 300 m relay, but seeing one of a dozen wheelchair racers cry after coming in 10th probably seems less upsetting.

I think that's the crux of the difference. But does it hold up to clear-headed analysis, stripped of ableist assumptions?

Why can't a runner with Down Syndrome also be truly, measurably, Olympics-grade fast? If an Autistic person can learn how to row really well, why should we studiously refuse to note who wins and who loses a rowing race? Maybe the Paralympics and Special Olympics should merge. For that matter, why isn’t wheelchair racing a “regular” Olympic sport, open to anyone? Does an able-bodied person really have an inherent advantage over a paraplegic, when both of them are racing in comparable wheelchairs? I honestly don’t know, but it might be something to consider. Something like this debate actually started back in 2012, when Oscar Pistorius ran standard Olympic track races with his prosthetic "blade" leg, which some people believed gave him an unfair advantage over racers with two “normal” legs.

Maybe that's one of the benefits of these sorts of events. They encourage all of us to think critically about categorizations of ability and identity we tend to take for granted. Of course, they're also really cool events, especially for people who like watching sports we don’t get to see very often.

Here are some links to get ready for the 2016 Paralympics in Rio:

Rio 2016 Paralympics

Rio 2016 Paralympics Team USA

Paralympics - NBC Sports

Paralympics Impressions
Disability Thinking - March 13, 2014

Final Thoughts On The 2014 Paralympics
Disability Thinking - March 18, 2014