#CripTheVote Disability Issues Survey

Illustration of a row of check boxes with a pen marking one box

It’s not enough for candidates to mention disabled people. It doesn’t mean much when they say they support us. It’s an empty rant when we complain that we’re left out, until we say what we want. What, exactly, do we want candidates to do with disability issues?

What disability policy issues do you care about most?

What kinds of disability policy ideas do you want candidates to talk about and support?

If we could push just two or three high-priority disability issues into this year’s election dialog, what would they be?

Take the #CripTheVote Issues Survey, and help us zero in on the top issues we want to hear about from candidates for office.

It’s free, anonymous, and will stay open until the end of April.

Click here for the #CripTheVote Issues Survey

#CripTheVote Update

#CripTheVote - Our Voices, Our Vote - Americans with Disabiliities and Political Participation - Twitter Chats - March 9, 2016: Democratic Debate - March 10, 2016: Republican Debate - One-hour before each debate, TBA - Take our Disability Policy Sur…

What’s next for #CripTheVote? Plenty.

1. Let’s try to get the next debate moderators to ask the candidates a disability policy question. Before the next Republican debate on Thursday, February 25, Tweet the moderators:

@wolfblitzer
@MariaCeleste
@DanaBashCNN
@hughhewitt
@CNN

For example:

Ask the candidates: What would you do to reduce the massive rate of unemployment among disabled Americans? #CripTheVote

Ask the candidates: 15.6 million disabled Americans voted in 2012. How would your presidency address their concerns? #CripTheVote

Ask the candidates: What do you view as the top three issues facing disabled Americans today? #CripTheVote

By the way, it's great to boost these kinds of messages by retweeting, but please also send your own proposed questions to the moderators. We want them to see lots of disability question ideas from a very broad and diverse disability community, not just a handful of activists.

If we all Tweet together, we can be heard!

2. The next pre-debate #CripTheVot Twitter chats will be held on hour before the Democratic and Republican debates on March 9 and 10. Gear up for the debates with us, and share your ideas on disability policy issues and how to get the candidates more engaged with our issues.

3. In the meantime, take a few moments to complete our #CripTheVote Disability Issues Survey. Pick you top issues and priorities. We will discuss preliminary results on the 9th and 10th, and will keep the survey open until the end of April. Our hope is to use the results to push candidates at all levels to take notice of the issues we care about most.

Click here to to complete the survey. It’s free and completely anonymous.

Podcast Preview: “The Cage / Menagerie Conundrum”

3 Star Trek pictures in a row, Capt Pike, Injured Capt Pike in a wheelchair, 3 humanoid aliens with big heads

Episode 30 of the Disability.TV Podcast will upload on Friday, February 26. Titled “The Cage / Menagerie Conundrum,” the episode will focus on some surprising disability themes in two of the original Star Trek series’ most memorable stories … the original, unaired Pilot, “The Cage,” and “The Menagerie, Parts 1 and 2.”

I get deep into spoilers, so I highly recommend watching before listening, on Netflix or Amazon Prime. Or, splurge a little and buy the DVDs.

Come explore the "final frontier" with me ... but pro tip: don't trust those Talosians! 

Throwback Thursday

Time machine from the film "The Time Machine"

One year ago in Disability Thinking: “What Kinds Of Ableism Do You See Most?"

I deleted the survey, but the ableism list is there to look over. Stay tuned for an online survey of disability issues for the upcoming U.S. Elections, part of #CripTheVote.

Two years ago in Disability Thinking: “Discussing TV's Disability Problems”

I guess the most notable thing about this article now is that in the two years since I wrote it, nobody has offered another comedy show based mainly on a disabled character. I know that the new show, "Superstore" has a guy in a wheelchair, but he's part of an ensemble cast and I haven't seen the show yet. I don't know whether the characters is funny, or whether disability is used at all to spark humor, successfully or not, offensively or not.

Tebow's Proms

Cartoon picture of dancing man and woman dressed for formal party

I’ve seen some chatter lately on the Internet about American Football star Tim Tebow’s charitable project “Night To Shine,” which funds prom events for high school age students with disabilities. They are controversial among what is most likely a small minority of people, most of whom are disabled people themselves.

The interesting thing is that there is an unusually wide gap between how simply and umcomplicatedly “good” the “Night To Shine” program looks to the casual observer, and how instinctively troubling it is for those of us who actually went through high school with disabilities ourselves. What’s the crux of the problem?

In a nutshell, arranging separate proms just for disabled kids validates and enables the barriers that prevent disabled kids from going to their schools’ regular proms. It’s essentially giving up on the idea of social inclusion. I get that to an actual disabled kid, a fun night out might be preferable to sitting at home alone to make a political point. But wouldn’t it be even better to get help and support to be able to go to the prom everyone else is going to?

Why do we need separate proms? And why isn’t the Tim Tebow Foundation asking that question?

I have a suggestion. Next year Mr. Tebow should instead offer to help pay for any prom that takes strong steps to include students with disabilities. You care about disabled kids. You’ve got money and the organizational tools to do ambitious things. Put your name and resources into integration, not segregation.

Note: I wrote about this type of thing last October, too.

Thinking About Accessibility

5 blue colored symbols of accessibility in a row: hearing impairment, sign language, wheelchair, wheelchair bathroom, guide dog

“I just want to say, before saying the winner, that we need to make every single thing accessible to every single person with a disability.” — Stevie Wonder

Grammys 2016: Stevie Wonder praised for comments on inclusiveness
Oliver Gettell, Entertainment Weekly - February 15, 2016

I was thinking today about the different ways people think, and talk, about accessibility …

First of all, the topic of accessibility in the disability context is all about whether or not physical environments and objects … and nowadays, virtual environments like the Internet … are fully, equally, and independently usable by people with physical or mental disabilities.

To put it another way:

“Accessibility refers to the design of products, devices, services, or environments for people with disabilities. The concept of accessible design ensures both "direct access" (i.e. unassisted) and "indirect access" meaning compatibility with a person's assistive technology (for example, computer screen readers).”Wikipedia “Accessibility"

That will do, I guess, but what intrigues me is that people interpret accessibility in fundamentally different ways.

Some people view accessibility as a kind of premium feature that adds value and prestige to a home, business, or public facility. They advertise accessibility as a bonus to customers, or as a marker of “corporate responsibility,” worthy of public praise. Actually, it's surprising how few people who can actually do capitalize on good accessibility. Many disabled people either won't frequent a business that isn't accessible, or will go out of their way to give their business to places that are. That, in a way, is the flip side of viewing accessibility as a praiseworthy "extra."

Some people think of accessibility as something added to selected spaces to benefit a specific disabled person, like an automatic door or wheelchair lift added to a school because there’s a student in a wheelchair there. This confuses “accessibility” … which is universal and ready when … and “accommodation” … which is by definition individual and only installed to meet someone's specific need.

Some people see accessibility as nothing but an arbitrary, annoying, expensive regulation, to be followed as quickly and painlessly as possible, or else ignored in the hope that nobody will complain until it’s too late to be able to do much to fix it.

Most often, people talk about accessibility as if it's an unusual pet peeve ... a real issue, but one that affects a small, quirky subset of the population, not a broad-based concern.

Of course, some people … particularly disability rights activists … consider lack of accessibility to be nothing less than discrimination. By not making a public space accessible, you are discriminating against whole categories of disabled people, whether you intend to exclude them or not.

There also seems to be two fundamentally different concepts of time in regard to accessibility.

Some people still think of accessibility as a new thing, a new set of requirements that it’s going to take time to adjust to.

Meanwhile, for disabled people especially, accessibility is a problem that’s been dragging on for decades. In fact, many of us find it baffling that anyone can still be unaware that accessibility is no longer an nice option, but has long been a legal requirement. The first federal accessibility standards were developed in 1968. Accessibility was included in the Rehabilitation Act of 1974 to apply to federal facilities. The Americans with Disabilities Act applied accessibility standards to businesses and local government facilities in 1990. We have all had decades learn about accessibility standards and comply with them.

Finally, some people consider accessibility to be an extremely hard thing to achieve. Yet, compared to so many other social equality goals, accessibility is incredibly easy, since it simply means following a detailed but clear and unambiguous set of construction guidelines. You don’t have to know anything about disability. You don’t have to have your “awareness” of disability “raised” one bit. You don’t have to feel comfortable around disabled people. You just need to make sure the space you are in charge of meets the standard. And if you don’t know exactly how to do it in your situation, you can ask for help, which is often free or available at very low cost. Materials and labor cost money, of course, but even then, it’s a definable, predictable, stable target to shoot for, and has been for decades.

None of these thoughts are at all original or revolutionary. I just think it’s helpful once in awhile to review them and ask why we are all still dealing with this problem like we just started working on it last week.

Weekly Reading List

Two shelves of multicolored books

A selection of last week’s reading …

I was sure that legalizing aid in dying was the right thing to do. Then I met Bad Cripple
Ann Neumann, Salon.com - February 14, 2016

Ms. Neumann gives a fair hearing to both sides of the assisted suicide debate. She also notes a few of the personality traits of some disability-based opponents, like Bad Cripple, that the uninitiated find hard to warm up to ... and then shows us why they are as they are and speak as they do. On paper, some anti-assisted-suicide arguments seem like a stretch. But most people never see or experience first-hand how long-term, severe disability puts our very lives in question by the very people who are supposed to protect us ... our families and the medical profession. When you have significant disabilities, it’s absolutely not paranoid to think that people might be wondering when your continued existence is worth the stress and resources. So it's hard not to feel that another disabled person's choice to die is an attack on our desire to live.

Candidate with autism targeted with ‘shocking’ online abuse
Eoin English, Irish Examiner - February 11, 2016

The precise nature of the hate speech against this autistic Irish woman is no more or less ugly than hate against other groups, but it's different and quite specific. With autism, as with other disabilities, the attacks like this are eliminationist. The message is that disabled people fundamentally don't deserve to live, and that their continued existence penalizes everyone else. It's probably a bit too easy to dismiss this kind of thing as trolling. The ravings of unrestrained bigots usually reflect some pretty nasty ideas among the general public ... just toned down.

When Having A Positive Attitude Backfires
Kristen Milefchik, Taking A Stand Sitting Down - February 10, 2016

Although this article is ultimately a call to action to support specific legislation, the Disability Integration Act, it can also serve as an excellent introduction to some of the most basic and essential components of disability rights and advocacy. Ms. Milefchik's most important point is that too many disabled people hide their pain and hardships, hoping to be more liked and accepted. Unfortunately, putting on a happy face blunts our own power to change minds and policies that really do need to be changed. I'll probably write more about this myself someday, since my views about what kind of faces we should put on have evolved a lot over the years.

Marriage Equality for Broke Ass Cripples
Mike Ervin, Smart Ass Cripple - February 12, 2016

I don’t think much about marriage myself. So I'm really glad that Smart Ass Cripple has finally explained and quantified the "Marriage Penalty" disabled people face, in a way that I fully understand. Now I am really pissed off about it, which is as it should be. Never content to make just one excellent point, he also gets in a pretty good shot at the kind of penny-ante austerity that justifies the Marriage Penalty.

Disabled people are allowed to work for pennies per hour — but maybe not for much longer
Lydia DePillis, Washington Post Wonkblog - February 12, 2016

This article at the Washington Post's Wonkblog paits a pretty accurate picture of what the fights over "sheltered workshops" and paying sub-minimum wage are all about. Unfortunately, the article leaves some questions hanging out there unanswered ... questions with very good answers. For example, severely disabled people can still receive lots of support, in essentially sheltered jobs, but which take place in actual businesses and with subsidized pay that is at least Minimum Wage. This costs public money to provide, but so do sheltered workshops.

More #CripTheVote

#CripTheVote - Our Voices, Our Vote - Twitter chats before Presidential debates, on disability issues and strategies for disabled voters.

Alice Wong, Gregg Beratan and I hosted the second #CripTheVote chat in the hour before Saturday night’s UFC fight … sorry … Republican Presidential debate. Once again, the response was encouraging and invigorating. Browse through the Storify below to see what people said about disability issues and the US General Elections.

A few people have asked if we plan to do more #CripTheVote activities. Yes, we plan on continuing the effort in one form or another through Election Day. Expect some details this week, in fact, in anticipation of the next scheduled debate, which is the 10th (10th!?) Republican Presidential debate on Thursday, February 25, at 9:00 PM Eastern.

Stay tuned!

Weekly Wrap-Up

Three cupcakes in a row, with a lit candle in each one

Before getting to the list of last week’s posts, I want to take a moment to note that today is my 3rd Blogiversary! Three years ago today I launched Disability Thinking. Here is the very first post: Test Post. Fascinating isn’t it?

As you know if you’ve been following the blog lately, the Disability Thinking Blog is now the Disability Thinking Website, with a new address, new location, and, I think, a nicer look and feel. Since January 1, 2016 the site has had over 5,500 page views, from 25 countries. The top ten are:

United States
Australia
Russia
Canada
United Kingdom
Ireland
New Zealand
Germany
Argentina
Sweden

The stats are not terribly impressive, but I think that’s partly because the counting function I used to use, through Blogger, counted all the weird bots and things that crawl all over the web, and Google Analytics only counts real, credible visits. Anyway, I’m happy with the site and how it’s doing, and it sure doesn’t seem like three years I have been doing this. Thanks to all who have visited, commented, and passed along things that I have written.

And don’t forget to check out the Support Page. Just sayin’.

This week’s posts:

Sunday, February 7

Weekly Wrap-Up

Monday, February 8

Weekly Reading List

Tuesday, February 9

#365daysofdisability

Wednesday, February 10

Ready To #CripTheVote?
More Debate

Thursday, February 11

Throwback Thursday

Friday, February 12

Disability Blogger Link-Up
#CripTheVote: Part 2

Saturday, February 13

#365daysofdisability