More Debate

Illustration of a red, white, and blue campaign-style button reading Election 2016

These debates are coming fast and furious now ...

Bad Conflict, Good Conflict: The Fifth Democratic Presidential Debate
Andrew Pulrang, Center for Disability Rights - February 9, 2016

Diffuse Disability, Democrats!
Emily Munson, Center for Disability Rights - February 9, 2016

The Eighth Republican Presidential Debate
Andrew Pulrang, Center for Disability Rights - February 10, 2016

Reading Between The Lines: Republican Debate Eight
Emily Munson, Center for Disability Rights - February 9, 2016

Maybe my standards have gotten too low, but I've been pleasantly surprised at how much disability has been mentioned in the debates. It's mostly John Kasich, but the others touch on disability, too, even if they don't fully realize they are doing it.

Ready To #CripTheVote?

#CripTheVote - Our Voices, Our Vote - Twitter chats before Presidential debates, on disability issues and strategies for disabled voters.

This #CripTheVote project is profiled today in the Washington Post:

The 2016 conversation has ignored disabled people. Now, they want to be heard
Caitlin Gibson, Washington Post - February 10, 2016

The first two #CripTheVote Twitter Chats are tomorrow, Thursday, February 11, 8 PM Eastern, before the Democratic debate at 9 PM Eastern … and Saturday, February 13, 8 PM Eastern, before the Republican debate at 9 PM Eastern.

Alice Wong (Twitter handle: @DisVisibility), Gregg Beratan (Twitter handle: @GreggBeratan), and (Twitter handle: @AndrewPulrang), I will be hosting, and we hope to see lots of disabled people participating … sharing thoughts on disability issues and strategies for getting candidates to address them. Just add #CripTheVote to your Tweets, and search #CripTheVote to read what others are saying.

We also have some resource pages set up right here at Disability Thinking. Take a look:

Incidentally, if you are not using Twitter, now would be a great time to start. Like all social media, the quality and relevance of the content depends on who you connect yourself with, and what you contribute to the conversation. And it doesn’t take much practice to keep the the 140 characters per Tweet limit. If you prefer not to join though, we will be posting Storify recaps of each conversation that you can read on a standard web page.

Weekly Reading List

Illustration of two shelves of multicolored books

Good, interesting things I read last week ...

Disabled People Need Not Apply
David Perry, Al Jazeera America - February 5. 2016

The ADA has been confused and misused in backwards-headed ways, by people who really think they are doing right, since the law passed in 1990. Here it looks like colleges are violating the employment rights of faculty with disabilities, under Title I, partially in an effort to prevent accessibility problems for disabled students, related to Title III. What's surprising and infuriating is that these mix-ups are still going on, creating a massive and obvious barrier to employment in an entire career field. Jeez Louise!

Nearly 14,000 disabled people have mobility cars taken away
Nikki Fox, BBC - February 3, 2016

Wow. I read about this months ago when it was in the planning stages. I got the impression that the UK government feels too many people were using the program who's disabilities weren't "severe" enough to justify the extra help paying for these cars. Maybe, maybe not. But it's hard to see how anyone wins when 14,000 people lose their cars. 14,000 people who now probably can't get to work. 14,000 people who now probably need help just to get groceries or to the doctor. 14,000 cars now out of the market that probably won't be replaced, meaning 14,000 cars that dealers may not be able to sell or lease to other customers. It's cruel, and stunningly bad policy.

Matt Frasier on the Future of Disability in the Media
Mark Hay, The Daily Good - February 2, 2016

There is a lot more in this article than an actor interview or a discussion of disabled people in acting. Matt Frasier says great, memorable things about disability that I wish all youth growing up with disabilities could read. His radical politics might put a few people off a bit, but what he says about disability is so sensible and obvious that it's nearly impossible to dismiss him as just another avant-garde weirdo.

4 Ways That ‘Our Minds Are Fine’ Is Ableist Toward Cognitively Disabled Folks
Cara Liebowitz, Everyday Feminism - February 6, 2016

This article, too, hit me like hard ... in a good way, but not without pain. The title makes the subject pretty clear, and I think pretty much anyone with physical disabilities can relate to the careful, "insidious" ways we distance ourselves from people we think have "worse" disabilities. It's so understandable but it's also so horrible. It's one reason I'm optimistic about the disability rights movement and Disability Culture. When I was just starting out, the applicability of disability rights and independent living to people with cognitive disabilities was actually debated, and now, at least, they are mostly not ... at least not among disabled people who have thought it through for a minute.

When I Asked My Daughter, “What Do You Think I Feel About Your Disability?
Ellen Stumbo, Hope and Encouragement for the Special Needs Parent - February 5, 2016

This mother seems like just the kind of person I would like to feed all of these "Weekly Reading List" articles to. She's on the right track with her disabled child ... at least in my limited opinion. But I also sense that she's suspended between two approaches to disability ... acceptance and combat. She seems to get that, too, but that doesn't mean it's easy for her to invest fully in acceptance. I shouldn't single out Ms. Stumbo here. She wrote the article, sure, but I feel like she stands for countless non-disabled parents of disabled kids, parents who feel pulled in 11 different directions not just on practical matters, but on how to think about disability. It's gotta be tough, and I know that sometimes we in the disability community can be tough on parents. But for what it's worth, as a disabled adult who grew up as a disabled child, I would much rather read an essay by a parent struggling with their eyes and ears open, than any parent who is totally self-assured.

Super Bowl Ads

Picture of an old-style TV set with four disability symbols on the screen

There were two Super Bowl ads last year featuring disabled people, and it looks like there will be two more this year.

Obviously, TV ads run during the Super Bowl have more potential to influence American popular culture and attitudes than ordinary, everyday. Not every ad is either memorable or ground-breaking, but the opportunity, the audience, is there.

The problem is that it is so easy to make completely well-meaning, disability-themed ads that send the wrong kind of message. The message is almost always positive, but that’s not the same thing as helpful, or inclusive, or empowering. Some ads that “celebrate” disabled people distance them at the same time. And then there are the ads that use disabled people to flat-out make us go "awww" and maybe cry a little ... like we are both the Clydesdale and the dog that Budwiser Super Bowl ad. Appearance doesn’t always equal progress, and warm, mushy feels aren't really what we are looking for.

That’s why I sort of agree with the Advertising & Disability website blogger that it’s better to show a disabled person incidentally in an ad about something else than to construct an ad around a disabled person or some sort of heightened, carefully spelled out “message” about disability.

With TV and movies, there’s time and space to have both deep disability focus and incidental, background disability. But in ads, there’s just not enough time to say anything very effectively about disability, other than, “We exist, and we’re fine.”

Which is actually a pretty good message. It goes to far to call it “ground breaking,” but it’s nice to see and I think it helps.

Housekeeping

Three silhouette figures doing housework

It has been a little over a month since redesigning Disability Thinking and moving it over to its new address. I think the new Squarespace setup is working pretty well. I would still welcome feedback on the look, feel, and organization of the new site.

Now might be a good time to mention few other bits of news about Disability Thinking:

#CripTheVote Pages

You will notice the addition of #CripTheVote to the navigation links in the upper right corner of each Disability Thinking page. #CripTheVote is collaboration between Alice Wong, Gregg Beratan, and myself, aimed at getting more disabled people involved in the 2016 Elections. Clicking the #CripTheVote link will take you to a set of pages that include resources on voter registration, accessible voting, the basics of the American political system, selected news articles on the campaign, and links to current Presidential candidate website. We will also soon add a Frequently Asked Questions page about the project itself. Come visit, and join our first two Pre-Debate Twitter Chats on February 11 and 13, at 8 PM.

Podcast

Almost 350 people have listened to Ep. 29: President Bartlett’s China Trip, the first new-format episode of the rebooted Disability.TV Podcast. Ep. 30 will come up on Friday, February 26. The topic will be two episodes of the original Star Trek, the original unaired pilot episode, “The Cage,” and the two-part episode “The Menagerie.” Both include important and rather disturbing depictions and messages about disability. I am a Trekkie, and my favorite series of the whole franchise is the Original Series. However, the depiction of the injured Capt. Pike is pretty dispiriting, and these two related stories make some very dubious moral points about disability. Disability.TV Podcasts are filled to the brim with spoilers, so if at all possible, watch the shows first before listening! The easiest way is probably to watch them on Netflix, Amazon Prime, or you can buy them on DVD.

Support Page

It has to be done. I have to make a reasonable effort to get some donations going so I can keep Disability Thinking going. All this isn’t exactly expensive, but it does have a cost, in cash, not just my time and emotional investment. So, I’ve cleaned up and updated my Patreon page, where you can make a monthly pledge. I also added a way to make a one-time donation through PayPal. You can do either of those things on my Support Page, also added to the upper right navigation links. It’s a cliché, I know, but in truth, even very small monetary donations help a lot.

Throwback Thursday

The time machine from the film "Time Machine"

One year ago in Disability Thinking: "Trailer: Daredevil"

Yes, "Daredevil" was a thing. It was good disability TV. And there's going to be another season of it, too. It's also the show partially responsible for raising the issue of audio description for programming on streaming services like Netflix. For several reasons, "Daredevil" was one of the most interesting things to happen in disability culture last year.

Two years ago in Disability Thinking: "Internet Memories"

I enjoyed rereading what I wrote two years ago about my website making and blogging history, going back to the mid 1990s. One thing has changed ... I no longer use Blogger, having moved everything over to Squarespace on December 31, 2016. So far, I am very glad I did, though Blogger served me very well for 15 years. I would love to her more about the Internet / blogging histories of some of the disability bloggers I've met over the last three years.

#CripTheVote: Our Voices, Our Vote ... First Twitter Chat on February 11th

#CripTheVote: Our Voices, Our Vote, Americans with Disabilities and Political Participation, Democratic Debate, February 11, 2016, 8 pm Eastern/ 5 pm Pacific

The Disability Visibility Project and Disability Thinking will host their first Twitter chat this year following the 2016 Presidential Election. Please join us!

#CripTheVote: Our Voices, Our Vote
Americans with Disabilities and Political Participation

Democratic Debate
February 11, 2016
8 pm Eastern / 5 pm Pacific

#CripTheVote is a nonpartisan campaign to engage both voters and politicians in a productive discussion about disability issues in the United States, with the hope that disability takes on greater prominence within the American political landscape.

Note: we will be hosting another Twitter chat on February 13, 2016 for the next Republican Debate.

How to Participate

Follow @AndrewPulrang @DisVisibility @GreggBeratan on Twitter for updates

Use the hashtags #CripTheVote and #DemDebate when you tweet.

When the debate begins, check out the live-stream: http://twubs.com/CripTheVote

Additional information on voting and people with disabilities
http://disabilitythinking.com/election-2016-cripthevote

A note on language and usage of the word ‘crip’:
https://www.wright.edu/event/sex-disability-conference/crip-theory

Questions? Media inquiries?
Email Andrew: apulrang@charter.net

Thinking Today: Universal Basic Income

Illustration of a 3-d white stick figure person sitting on the floor, thinking, with top of head tipped back to display gears for brains

I was thinking today about the idea of a Universal Basic Income.

The idea is that everyone would automatically get a fixed amount of money to live on from the government. The amount would be set so as to be just enough for a person to live on ... to pay for food, shelter, clothing, and maybe for transportation, education, and health care, unless those were available through a separate government benefit. Everyone would start out with enough to live on. If they wanted to live more luxuriously, if they wanted to buy more cool stuff, or travel, or pursue some bigger goals, they would work to make money above their Universal Basic Income.

This is an economic policy idea that seems far-fetched, but has theoretical support from both liberal and conservative economists. It's also being tested in a few places ... small parts of countries, states, cities, etc. The biggest technical question is whether a Universal Basic Income would cause people to stop working, and thereby reduce productivity and the tax base needed to pay for the benefit.

The most attractive thing about the idea is that you could eliminate almost all other social services that are currently designed to help only certain people, or that try to help poor people in less direct ways. A Universal Basic Income would also be really easy to run. All you need is an infrastructure to write a bunch of checks, or make a bunch of direct deposits. There's no need for bureaucracy to determine complicated eligibility or root out fraud and abuse, because everyone is eligible.

How would Universal Basic Income work for disabled people?

First, it could remove one of the most consistently annoying and harmful barriers we face ... having to qualify for assistance and maintain eligibility. The work disincentive would be GONE, and we would never have to prove our eligibility for services again.

On the other hand, would disabled people need a higher Universal Basic Income than everyone else, to meet our higher living expenses? Would giving us more violate an important aspect of the idea's appeal ... its universality?

Second, it would be an experiment in radical choice, something disabled people are often more attuned to than most people. With most traditional human service models erased, we would be free to use or money to purchase whatever we felt we'd need ... with or without counseling that purports to make us better, smarter, more motivated people in some way.

Again, we come back to how much money we would have. If the amount was too small to meet our higher cost needs, the lack of additional support could end up being terrible.

Maybe we should be thinking about a Universal Basic Income just for disabled people. It would be something like SSDI or SSI with eligbility based only on disability, not at all on income or employment status. I can forsee an escalating number of checkpoints and bureaucratic layers developing over time, but something like this idea seems worth exploring.

Here's an article that gives a good overview of Universal Basic Income, and provides links to further reading on the subject:

Two Canadian mayors want to launch an experiment that could change how we think about poverty forever
Dylan Matthews, Vox.com - June 24, 2015