Question For Discussion

I have a question inspired by a Twitter exchange I just saw involving @ollibean, @emily_ladau, @autselfadvocacy, and @AndyAUCD, about how a family can find help for a college student with disabilities who needs personal care assistance while at college.

Question:

Why is it so common for disabled people and their families to wish for programs and support services that already, basically, exist?

Are the programs too opaque and difficult to find? Are they under-funded? Are disabled people and their families not looking in the right places or asking the right questions? Do existing supports target the wrong problems and the wrong populations? Is it just poor PR and marketing skills? Are peoples’ expectations too high, so they don’t go for services that aren’t 100% perfect?

What do you think? Leave your thoughts in Comments.