Blog Topics Update

Word cloud around the words blog and topics
I’m feeling poorly today … to quote Dr. Seuss, I’ve got “crummies in my tummy,” so I’m just going to run down a few of the blog posts I’m working on for the next few days:

Sex and Disability: Is It Really A Taboo?

I’ve seen quite a few blog posts and news stories lately with this theme, and while I certainly agree most peoples’ nations about disability and sex are either screwed up or naive, I’ve never quite agreed with calling it a “taboo.”  I’ll explore this and try to figure out more precisely what we’re dealing with.

Logical Fallacies

One of my favorite podcasts focused recently on logical and rhetorical fallacies, and from there I found a really cool website with a listing of the main ways we weaken our arguments and suffer failures in critical thinking. I hope to identify some of the fallacies that crop up most frequently in discussions about disability.

DIY Disability Policy

If you could design a three-point national disability policy agenda, from the ground up, what would you include? Think practical, but think big, too!

Defining Inspiration Porn

I hope to finish this thing by the end of next week. It’s worth doing, but exhausting and, truth be told, a bit depressing.

Also, look for another Disability Blogger Link-Up this Friday, October 23.

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Weekly Reading List

Illustration of a multi-colored stack of books
Notes on last week’s reading …

Shaun Heasley, Disability Scoop - October 19, 2015

This is clearly a good thing, but in what sense? More jobs for disabled people is more jobs for disabled people. How many of the people who got these jobs would have gotten private sector or local government jobs if the federal jobs hadn’t been made available? I’m guessing quite a few, since the job market for disabled people is pretty thin. Plus, federal jobs have some of the features that disabled people value most, like job security and excellent benefits. And then there’s the commitment by the government to employ disabled people as a good in itself, a commitment that’s very rare in other workplaces. What I’d really like to know is how much of a dent does 100,000 newly employed disabled people make in the overall unemployment rate for disabled people?

Cheryl Green, Who Am I To Stop It - October 14, 2015

Thank God for Cheryl Green for stating the obvious, because for some reason it rarely gets said. Those two main models of how to understand disability are useful, but not doctrines. Mixing them is just fine, as long as you are thinking about what you are doing and what you’re trying to say. Disability activists need to say so more often, because people can get awfully uptight about the Medical Model / Social Model dualism.

Lane Harwell, Fox News Opinion - October 14, 2015

The article is fine, nothing radical, and the goal is worthy, but you can tell from the comments that it's out of place in a Fox publication. This man is encouraging arts organizations to include more disabled artists at all levels, but commenters hear this as a mandate forcing disabled people to participate in the arts. How they get that from the article is beyond me.

Emily Ladau, The Disability Dialog - October 15, 2015

This kind of thing rarely happens to me, but that's partly because I'm a bit of a hermit. More about this after the next article listing …

Bill Peace, Bad Cripple - October 14, 2015

I get impatient and judgmental of fellow disabled people's outrage at these predictable instances of ableism. Then I remember that if stuff like this happened to me half as often as it does for others, I would be in a constant state of fury. What people who complain about disabled people being cranky fail to grasp is that in most cases, the ill-temper they actually see in us is us being hugely restrained. And as I say, I forget this, too.

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Disability.TV Podcast Reboot: Upcoming Topics

Disability.TV logo, picture of an old-style TV set with four disability symbols on the screen, and the website address: disabilitythinking.blogspot.com
As I announced yesterday in a brief episode of the Disability.TV, I have decided to "reboot" the podcast. It will start November 30 with a discussion of one of my favorite episodes of The West Wing, dealing with President Bartlett's Multiple Sclerosis. Episodes will go up monthly, and each one will focus on either a TV episode dealing with disability, or on a disabled character on a TV show.

I hope it will be a lot easier and a lot less tedious discussing these smaller bites of TV shows. Usually, disability makes the biggest impact on TV in specific moments, and with a few standout characters ... another reason I think this might be a better approach.

If you are interested in disability on television, please have a look at this list of topics. Let me know which ones you would look forward to the most, and whether there are other episodes and characters you would suggest.

Even better, if you would like to join me for a discussion on the podcast, or maybe send in some written or audio comments, please do let me know so we can set it up.

Here is the list of topics I have so far:

The Cage / Menagerie Conundrum 
S. 1, E. 1 and S. 1, E. 11 & 12: “The Cage” & “The Menagerie Parts I and II” 

Calling The Klingon Kevorkian 
S. 5, E. 16: “Ethics” 

Advocate Or Asshole? 
S. 2, E. 6: “Melora” 

The Story of House’s Leg
S. 1, E. 21: “Three Stories” 

Character Profile: 
Dr. Gregory House 

Chief Ironside, Peer Counselor 
S. 1, E. 11: “Light At The End Of The Journey” 

President Bartlett's China Trip 
S. 6, E. 9: “Impact Winter” 

Character Profile: 
Joey Lucas 

Tyrion’s Prison Conversations 
S. 4, E. 8: The Mountain and The Viper” 

Character Profile: Bran & Hodor 

George Fakes A Disability 
S. 9, E. 1: “The Butter Shave” 

Character Profile: Mickey Abbott 

Hank’s Epiphany 
S 5., E. 11: “Promises” 

Max Melts Down 
S. 5, E. 18: “The Offer” 

Character Profile: Jewel 

Character Profile: Claudius 

Character Profile: Dr. Kerry Weaver 

Winchester & The Piano Man 
S. 8, E. 19: “Morale Victory” 

Character Development Instrument
S. 1, E. 1: “Pilot” 

This Is Why We Have No Friends
S. 3, E. 11: “The Friend” 

You can get in touch with me by sending an email to: apulrang@icloud.com. Or, contact me by Twitter: @AndrewPulrang, or Facebook Messaging.

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Inspiration Porn: High School Gestures

Silhouette illustration of a young man and woman dancing at a formal dance
I am still working on a sort of master post on Inspiration Porn, but I want to take another detour to talk about a subset of this loosely defined phenomenon. I'll call it High School Gestures, referring to three practices that have become popular in American high schools and a familiar trope in "feel good" media:


2. Organizing and hosting "special" prom events, specifically for disabled students.

3. Allowing a disabled student to "run a play" with a sports team.

Three key factors make these practices a type of Inspiration Porn:

1. They are all intended to be “good deeds” for people assumed to be stigmatized and unable to make satisfying social lives for themselves.

2. Media coverage of these events almost always focuses on the kindness of the organizers, relatively little on the disabled individuals these events are supposed to benefit, and not at all on the stigmas and barriers disabled students face every day in their effort to participate in school social life.

3. The events are often further interpreted as encouraging signs that "the kids today" may not be going to Hell after all ... the premise being that on every other day it seems like they are, an unfair and insulting idea in itself.

Labeling these kinds of events Inspiration Porn obviously indicates that I have problems with them, and I do. They are usually well meaning, but contrived and, in a sense, fake. I worry that later in life, some of these disabled youth will look back on these “feel good” events and and cringe at how patronizing they were, and wonder how they allowed themselves to be treated as objects of pity and charity. No matter what the specifics, these events are almost always reported in the same sentimental way, so that even when a specific event is really sincere, it still comes off as weepy Inspiration Porn. The worst thing, in a way, is that these are usually “one off” gestures that benefit one especially loved disabled person, while most disabled kids are unaffected.

Let’s be clear. An unstated premise of these gestures is that “normal” high school social rituals are inherently exclusive and off-limits to most disabled students. That is the problem, and these flashy gestures don’t do much to change the situation. It’s like giving a box of extra-tasty chocolates, just once, to starving person, instead of what they need, which is a reliable diet of nutritious food.

In addition, a lot of disabled people themselves find these kinds of practices truly vile and offensive, in a very personal way. And I think it’s important to emphasize that this feeling is real, not intellectualized or theoretical, or deployed merely for rhetorical purposes. And no, it doesnt matter that the intentions are good. We feel it like a gut punch.

On the other hand, I have started thinking that the acts themselves aren’t always so terrible; it’s the way they are reported that makes us gag. In a couple of cases about prom court elections, it seemed like the students sincerely voted for people they genuinely liked, almost without reference to their disability. It's just that the media covered it like it was a charitable act. Still, one or two isolated examples just don’t go far enough when the majority of disabled students are entirely left out of extracurricular activities and social life.

Instead, I would prefer schools to discourage these types of grand, benevolent gestures, and instead take up the long-term and less immediately gratifying job of removing barriers to a full social life for all disabled students.

How? Here are some ideas:

1. Schools should support a wider variety of extracurricular activities, besides the prom and the the most popular sports programs. "Schools should support" means school district taxpayers should demand and agree to pay for more diverse, robust social options that appeal to all kinds of students, including those with disabilities.

2. Schools should create clubs and organizations that are associated with the top sports programs, but serve peripheral support functions and can accommodate non-athletic participants. It's unrealistic to think that chess club, theater companies, and community service groups are ever going to be as popular as football and basketball, so let's create and recognize some real support roles that disabled students ... and other non-athletic students … can play.

3. Make it absolutely clear that all students … including those who don't have dates and just want to go and have fun … are welcomed to attend all of the proms, formals, and other social events. The long term goal here might be to permanently de-emphasize the "coupling up" aspect. Also, it would help to downplay the most expensive aspects, like tuxes, gowns, and limos. Don't ban them, but don't glorify them.

4. Instead of charitably giving awards and honors to disabled people who would probably not qualify under ordinary circumstances, create a wider variety of awards and honors that are honest and real, and which disabled students (and others) can more frequently earn without anyone having to make a “special” effort.

One argument against these suggestions might be that they shortchange students on learning valuable lessons about kindness and generosity. For one thing, that's like saying that we need people to be in poverty so that everyone else can learn to be generous. I would also counter that there are much more important lessons to learn about respecting and including all kinds of people and normalizing those values, rather than treating ordinary decency as some kind special gift that privileged people occasionally bestow on those deemed “less fortunate.”

In short, a little less “Make-A-Wish” and a lot more commitment to deep integration and equality. That’s what we should be shooting for. It’s harder to accomplish, but the long term benefits are far greater than the fleeting results of one or two big, short-term gestures per year. And although wholesale culture change sounds like a near-impossible task, these specific steps in that direction are eminently achievable.

We have to insist on it, not just for our disabled students, but for all of them.

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Weekly Reading List

Illustration of multicolored stack of books
There’s good stuff to read every week …

Jon Stone, The Independent - October 6, 2015

Employment is a fairly simple issue for disabled people. Most of us want good, well-paying jobs, but way too many of us aren't gainfully employed at all. There are both internal factors and external factors for this. In the disability community, we usually focus more on the external factors, like discrimination.

Benefits are important to disabled people, too. When we need them, we really need them, and it can be galling when we have to defend that need in the face of both specific skepticism and anti-benefits / austerity ideology.

The real nightmare is when people like Iain Duncan Smith try to use our desire for employment as a justification for cutting and narrowing benefits. We are told that the benefits system keeps us under-employed, and we know that in a sense, this is true. The difference is that we recognize it as the structural problems of an outdated system, while politicians ... usually conservative ones ... see it as a moral issue of benefits bankrolling laziness and complacency. Yet they are starting to learn to speak our rhetoric, suggesting that tightening and cutting benefits will somehow, magically, liberate us to achieve our employment dreams.

Meryl Gordon, New York Times - October 6, 2015

I never idolized the Kennedys, but I don't take any sort of pleasure in finding out more bad things about the family. It makes me kind of uneasy to think that people will read this as simply more fodder for political partisans to prove that the Kennedys were horrible. One reason I do want to read this book about Rosemary is that I'm curious whether what happened to her was worse because she was a Kennedy, or whether her experiences were actually kind of typical for mentally or intellectually impaired people of her time. My guess is that her life was pretty typical, but made somewhat worse by Joseph Kennedy's ambition and patriarchal arrogance.

Karin Hitselberger, Claiming Crip - October 6, 2015

This is a heartbreaking account of bullying, and it raises a question I have thought about for a long time. How much disability-related bullying is really about disability, and how much is disability just another of many meaningless excuses for bullying? My guess is that bullies are gonna bully. If there's no disability, it'll be something else ... like the color and cut of a dress. The reason this matters is that it calls into question how useful increasing "disability awareness" really is. I can easily imagine high school students who would never make fun of a fellow student's wheelchair, but see no contradiction in mercilessly teasing the same student's hair, shoes, or accent. Kids and teens are very good at missing the point.

Disabilitybusters - October 9, 2015

I am generally on board with “disability awareness” skepticism (see above). I also prefer discussing policy more than the human relations stuff. However, while I agree with what’s in this article, the way the way the awareness vs. issues conflict is framed here a little too stark. Sometimes, “awareness” does fool us into thinking we are doing something, while it distracts us from dealing with more “substantive” disability-related problems. I don’t think it’s usually a deliberate dodge though, and understanding something about the disability experience can help keep policy discussions on track.

Steve Silberman, BBC Future - October 6, 2015

There can't be enough articles, interviews, and reviews of Steve Silberman's book about neurodiversity and the massive mischaracterization of autism.

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