Weekly Reading List

Picture of a stack of multicolored books
Elizabeth Picciuto, The Daily Beast - September 23, 2015

Ari Ne’eman, Sometimes A Lion - September 20 & 26, 2015

Kathleen McLaughlin, SF Gate - September 26, 2015

Sophie Quinton, The Pew Charitable Trusts / Stateline - September 17, 2015

All 5 articles deal with employment of disabled people, in particular, the increasingly outdated practice of routing them into lesser, lower-paid, “sheltered” employment. This is a foundational issue for the disability rights movement. It’s also a sort of litmus test for service providers and others who want to be our allies. Are they willing to recognize that yesterday’s way of doing things … though maybe the best we could do at the time … may not be acceptable anymore? Can they turn their back on familiar ideas and assumptions, and embrace a new outlook? It’s not as easy as it sounds in a blog post, but it is essential.

Plus, as Ari Ne’eman points out, disabled people, too, need to take a leap now and then, and we don’t always step up and do it right away.

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Accessibility Rating: Into The Weeds

AXS Map logo
September 26 - December 31, 2015

It is entirely possible do go out and do credible, informative accessibility ratings without having the complete ADA Accessibility Guidelines tattooed on your brain. You don’t need to know everything. You don’t have to take a hundred measurements at every place you visit, either. 

It is, however, important to understand the fundamentals of accessibility in the United States in 2015. You can’t really get a proper grip on advocating accessibility without understanding:

a. What the law actually says about accessibility, and

b. What “accessible” actually means.

Which buildings are required to be accessible?

First of all, it’s not so much “buildings” as businesses that own and operate buildings or portions of buildings. Which businesses are required to have physical facilities for the public that are accessible?

- If it was built before 1992, it’s required to fix any accessibility problems to the extent it is “readily achievable.” That’s a very loose standard, open to a lot of interpretation and pleading, but it does open the door for advocacy and some basic improvements. There is no “grandfather clause” in the ADA for anyone.

- If it was built after 1992, it must be fully accessible. Full stop.

- If it was renovated, all or in part, or added to, the worked on bits must be fully accessible.

There are standards for all kinds of buildings and spaces, including schools, hospitals, hotel rooms, apartments, and recreation facilities, though the exact laws that apply to some of these kinds of places are sometimes separate from the Americans with Disabilities Act. Another complication is that the generally, the only officials who are really charged with enforcement are local building code officials, and they technically don't enforce the ADA. They enforce local building codes, which usually, (but don't always), mirror the ADA Accessibility Guidelines.

Nevertheless, basic accessibility does tend to boil down to a few important standards that apply in all kinds of situations.

What does “accessible” mean?

The first thing to say is something I think most people already know, but at times we forget. There are two ways of assessing accessibility. Is it accessible to me, with my disabilities, and does it comply with legally applicable accessibility standards. Accessibility standards aren’t perfect. They aren’t the best a business can do. They are a minimum standard. If every building complied with them, there would be much better accessibility for everyone, though still not complete.

That said, here are some basic standards to keep in your head as you rate accessibility of businesses you visit:

Doorways should be at least 32” wide. That means 32” of clear space, with nothing in the way. Make sure that when you open a door, the door itself doesn’t impede a wheelchair user’s progress in or out.

Hallways and other paths, like sidewalks, should be at least 36” wide. Again, that means clear, unobstructed space. Watch out for aisle displays in stores and things like outdoor restaurant seating that can narrow otherwise adequate sidewalks.

Ramps should also be at least 36” wide, and not too steep. A ramp should take at least 1 foot of horizontal distance for every 1 inch it rises. Don’t measure the ramp path itself. Measure the total height it climbs and the amount of flat space it takes up. Like this:

Diagram of the proper scope for a wheelchair ramp


Ramps should also have railings on both sides. That’s both for safety, (not falling off the ramp), and so people can haul themselves up if they need to, in a wheelchair or on foot.

Entry areas near doors, areas at the top and bottom of ramps, and turning spaces inside restrooms and toilet stalls should be based on a minimum 5 foot square turning area. It’s also helpful in figuring out if other interior spaces are spacious enough or too cluttered. Like this:

Diagram of 5 foot square wheelchair turning space


Accessible restrooms and / or accessible toilet stalls should combine enough clear maneuvering space, toilet height within certain parameters, and secure horizontal grab bars behind and on at least one side of the toilet. Something like this:

Diagram for accessible toilet stalls


Designated disability parking should include spaces marked both on the pavement and on a vertically posted sign, and at least one adjacent access aisle. For example:

Diagram for accessible parking spaces


For the complete accessibility standards applicable in the United States, consult the United States Access Board ADA Standards.

One more note ...

Whenever possible, explain the practical, real-life problems that specific barriers pose. For example, don’t just say, “The doorway is only 29” wide.” Add that this means most wheelchairs can’t get through.

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Join The Accessibility Mapping Campaign!

AXS Map logo

Let’s do this.

Dominick Evans and I have set up a “Mapathon” at AXS Map, part of the Celebrate Access Equality 2015 event. Our goal is that by the end of 2015, at least 200 businesses in the United States will be given accessibility ratings by at least 20 people participating in their own towns and travels, using the AXS Map website and mobile app.

Watch this video to see how AXS Map works, and how to approach doing on-site accessibility ratings:


So, what’s the Marathon? It’s just a way to keep track of how many surveys get done during this online-organized effort. To participate, you need to do three things:

1. Register free at AXS Map. This sets you up to be able to enter the results of your accessibility ratings.

2. Go to our Celebrate Access Equality 2015 Mapathon page, and join it. All of the surveys you do until December 31 will be added to our campaign total.

3. Download the free AXS Map mobile app to your smartphone or tablet. This is optional. You can do everything on the website if you want. The app just makes it a little easier to add your ratings immediately while you are out doing them.

That’s it! Simple, right? Tomorrow, I’ll post some tips on how to judge whether or now something is accessible.

Celebrate Access Equality September 26, 2015
If you are disabled, or interested in disability rights, then you probably know the frustration of encountering businesses and public facilities that are still not accessible, 25 years after the ADA became law. It’s frustrating in principle, and it’s a practical barrier to full participation, especially when you don’t know which places are accessible, which are not, and which features are usable. AXS Map documents the issue, and creates a more and more reliable and complete resource on accessibility.

But it’s only as good as the ratings entered. Most cities and towns don’t have any surveys. That’s why we’re doing this. We want everyone who knows about accessibility problems and complains about them to do something constructive about them. Documenting the problem is a vital step, and identifying places that are accessible is incredibly useful. Let’s see how many places we can rate between now and the end of the year!

Also, if you do participate, please keep us and all your friends informed about what you are doing. Share the link to the Mapathon. Post on your Facebook Page and your Twitter Feed when you enter another rating. Encourage your friends, families, and coworkers to join the effort.

If you have any questions or just want to share your experiences, we’ve set up an email for the effort:


We look forward to hearing from you, and seeing those numbers go up!

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Disability Blogger Link-Up

The word Blog surrounded by word cloud

Once more into the Link-Up friends, once more! Share a disability-related blog post or article here, any time between Friday, September 25 and Midnight Sunday, September 27, 2015. And of course, read what others have posted.

Technical note:

To make the links easier to browse, in the “Your name” blank, type the title of the article. In the "Your URL" blank, paste the address of the item you are posting. That’s:

Name = Title of your article.

Your URL = Link to your article.

Then click the "Enter" button. That's it!

Go ahead and post, read, and enjoy! This Link-Up will close

at Midnight Eastern on Sunday

. The nextDisability Blogger Link-Up will start Friday, October 9, 2015.


More About Access Surveys

3-d white stick figure in a wheelchair at the bottom of a flight of stairs
Last weekend, I posted about the Celebrate Access Equality social media and action event coming up this Saturday, September 26. In addition to Twitter chats and other events, organizer Dominick Evans and I will kick off a campaign, using AXS Map, to document accessibility at businesses and attractions across the United States.

We all run into places that should be more accessible every day, and we rightfully complain about it. We also all know places that have good accessibility, and though we probably reward them with our loyal business, we may or may not share this valuable information with others. Map-based accessibility rating systems like AXS Map may be the best way available to apply grassroots advocacy pressure to improve access, while creating a useful resource to disabled people and their families who also just need to know where they can go for a dinner out, a movie, or a hotel room for a business trip or vacation.

Our plan is to set up a Mapathon at AXS Map, and invite anyone who wants to participate to rate businesses and attractions they visit ... as many as possible from September 26 through the end of the year, December 31, 2015. Every site you rate and enter into the system makes it a more complete resource.

Here are some tips and observations to think about before you get started this Saturday:

Tips:

Pick a goal for each week. Do one, two, or three places per week. Or, do one a day. If you are out and about a lot most days, maybe commit to reviewing every place you enter. You may prefer to tackle a specific street or a particular neighborhood. Whatever your goal, set it and stick to it.

Figure out what works best for you. Install the AXS Map app and enter review data right there on the spot with your smartphone or tablet. Take notes and enter the data later, when you can stop and concentrate without being noticed or getting in anyone’s way. Or, wait until you get home and use the full website to enter all the data you’ve collected during the day. Whatever method you choose, try not to rely too much on what you remember about a place. Take notes, and enter them while they are still fresh. The sooner you report on a visit, the better.

Decide whether or not you will talk to business owners about what you are doing. AXS Map is designed a lot like Yelp and other customer rating sites. It’s entirely possible to enter accessibility reviews without dealing with the staff. On the other hand, it can be helpful to ask staff about their accessibility features, which may not be obvious to you at first glance. Letting business owners know about the project also makes accessibility a higher priority for them.

Maintain a positive attitude when you do deal with business owners and staff. Be honest, but not accusatory. If you catch some sort of flack about what you are doing, remind staff that it's just like any other kind of online review, except that it's focused on accessibility. It will also be helpful if you can give owners the contact information for a local place where they can get free or low-cost help to make their businesses more accessible. A good place for them to start is your nearest Center for Independent Living.

Use the AXS Map Notes field to add details that the star ratings alone don’t cover. For instance, this is where you might note that the accessible entrance is around the corner, or that the business has a portable ramp you can ask for.

Observations:

The purpose of a customer review site like AXS Map is not necessarily to document full ADA compliance, but to provide practical information for people with disabilities. The important question is whether a business or a feature of that business is easily and independently usable, not whether it meets every legal requirement.

Independent access is very important. If a customer with a disability would need help to access goods and services, that's better than no access at all, but considerably less than fully accessible.

AXS Map is designed for somewhat subjective reviews. You don’t have to get out a tape measure and provide exact door widths and space analyses of every restroom. You can use your best judgment about whether each feature is accessible, and you can give partial credit for barriers that exist, but may be less severe than others.

On the other hand, it’s important to have some idea of what “accessible” does and does not mean, including some of the key measurements we look for. For instance:

- Doorways that are at least 32” wide.

- Hallways and clear pathways that are at least 36” wide.

- Ramp inclines should be no more than 12 degrees. The easiest way to determine that is to measure the vertical rise the ramp traverses, and the horizontal run of the whole ramp. Ramps should be at least one foot long vertically for every one inch it climbs horizontally. A one foot high step requires a ramp that traverses at least 12 feet in horizontal space. A ramp shorter than that is too steep for ease of use and safety.

- Toilets in stalls should have two grab bars, one on the back wall, the other on the closest adjacent wall.

- Look for clear, level turning and maneuvering spaces that are at least 5’ square. Anything less makes it hard or impossible for a wheelchair to maneuver. This is especially important in restrooms and at the top and bottom of a ramp.

- It’s important to know that a single step can be as much of a barrier as three or four steps. Disabled people don’t always have friends or “caregivers” with them, and accessibility should never rely on staff who are “willing” to lift a wheelchair user or provide some other sort of physical assistance. Some wheelchair users can bump themselves up or down a single, very small step, but anything more than that is a real barrier.

- If your are a wheelchair user or are blind, you may want to have a partner to do surveys with you. That way, you can fully investigate every place you visit, including those with major barriers to entry.

Stay tuned for more information on joining our Mapathon!

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Weekly Reading List

Picture of a stack of multicolored books
I read some things last week ...

Dylan Matthews, Vox.com - September 17, 2015

Dylan Matthews continues to do great and necessary work on autism at Vox.com. He is autistic, and has written at least one other major piece for Vox explaining the neurodiversity view of autism. I also found a short article he wrote 3 years ago for the Autistic Self Advocacy Network. The best thing about this is that Vox isn't a publication about disability, and Matthews usually writes about other things. So although the subject is important to him, he has both an insider and outsider voice, interested, but objective. Of course, it helps that there is the new book Neurotribes for him to write about, and presidential candidates to say stupid things about autism as well.

Ari Ne’eman, Sometimes a Lion - September 17, 2015

Ari Ne’eman, Sometimes a Lion - September 20, 2015

Speaking of autistic voices being crystal clear on difficult topics, Ari Ne'eman has started a blog. He is the Director of the Autistic Self Advocacy Network, and has just finished a term on the National Council on Disability. His first two posts are complex and wonkish, but also quite readable. Everyone interested in disability issues in public policy is probably going to love Sometimes a Lion.

FlutistPride’s Blog - September 15, 2015

FlutistPride is a frequent commenter here at Disability Thinking. She mentioned working on a series of posts on the "Five Temperaments" but I wasn't sure what she meant by "Five Temperaments," and it took me awhile to get around to reading the posts. I am so glad I finally did. The descriptions of each "temperament" are so accurate and relateable they're spooky. I mean that in a good way, though there may be moments of discomfort here, for disabled people, family, or service providers. I guess you could say this is a trigger warning. You may feel like one or two of your deepest secrets has been found out, or that some habits of yours you thought were utterly baffling and unique turn out to be pretty simple and predictable. But do read. It's all worth thinking about.

Helen Rutherford, The Mighty - September 15, 2015

I'm glad this article appears in The Mighty, which seems to skew heavily towards readers who are parents of disabled children. I'm glad, because Rutherford's message is as important to parents as it is to adults with disabilities. Disabled youth need disabled role modes. Also, just because a disabled child or teen seems happy and well-adjusted, doesn't mean they actually are. This is one reason why so many of us balk at images of disability that emphasize how brave, cute, or cheerful disabled people are. We get the mistaken message that in order to be accepted, we have to be happy and low-maintenance. It's an understandable confusion, with really unfortunate and unnecessary effects that parents can do a lot to prevent.

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Celebrate Access Equality, September 26, 2015

Join us on September 26, 2015 Below, a row of accessibility icons for wheelchair, sign language, learning disabilities, visual impairment, hearing impairment, walking with cane
I have been seeing Facebook posts and Tweets from disability blogger, activist, and filmmaker Dominick Evans, about a multifaceted event he’s been planning for September 26, called Celebrate Access Equality. For some reason, I kept mentally noting it and then promptly forgetting about it. I can’t keep track of every disability rights event, and even if I could, I don’t have the time and energy to dive deep into all of them. So this one slipped to the back burner.

Celebrate Access Equality September 26, 2015
Today I got an email from Dominick, which he sent out to a whole bunch of online disability activists and bloggers. I read it, and basically, I’m in! This event is going to be well worth the time and effort, no matter what kind of disability rights activity you are into. Here is Dominick’s email.

Hello Everyone!

I hope you are well! I’m writing to tell you about a project I’ve been working on the last several months. I am working with others with disabilities around the world to promote a day to educate and inform about access barriers. I believe that the vast majority of discrimination people with disabilities face is due to lack of access.

In my mind, access isn’t just about physically being able to move around this world. Access barriers can be mental and emotional. Access barriers can include stigma and oppression. As such, something needs to change. We need to make the  world aware of access barriers, so that real change can be made. That is the idea behind the day of Access Equality.

Participation can occur anywhere in the world. There are a variety of ways to participate. These include:

-blogging
-sharing our FB page located here:  https://www.facebook.com/AccessEquality
-tweeting about access barriers using  #AccessEquality
-contacting state and federal government representatives
-protest in your own community
-sign petitions relating to access barriers
-rate a business for accessibility on apps like AXS Map and AbleRoad
-support organizations holding protests, actions, and events on September 26 by sharing their updates

We’re also planning events throughout the day, including a twitter chat, and live streaming.

We are offering two gift cards on Amazon to encourage participation. One person will randomly be selected from those who choose to blog, and one person will be selected from those who take pictures in their community and post them to our FB page and/or using our #AccessEquality. Participants do not have to be disabled themselves, although we heartily encourage individuals to share their own personal experiences with access barriers!

The idea is to create so much content and noise on September 26 that it is too hard not to notice us.

You can find more ideas and information here:
http://www.dominickevans.com/2015/09/celebrate-access-equality-on-september-26/

I could really use your help. Please share this information with your networks and encourage participation. Please also consider participating. We need your voices!!

I appreciate your consideration and possible participation.

Thanks,
Dominick

I plan on joining in the Twitter discussion on September 26, posting a blog post here at Disability Thinking on that day, and helping promote all of the above activities.

Most of all, I plan to help Dominick kick off a really significant push for disabled people and disability activists to enter hundreds, maybe thousands of businesses into online accessibility mapping tools like AbleRoad and AXS Map. Nothing is definite yet, but it looks like our best bet will be to use AXS Map, which has a feature that keeps track of group mapping efforts.

To review ...

These mapping tools use existing Internet-based maps and consumer review sites like Yelp to form the basis of easily consulted reports on accessibility at businesses and other public facilities. Both programs can be added to and consulted on a PC’s web browser, and both also have accompanying mobile apps, so you can enter reviews immediately, without having to take notes and enter them later. Anyone can go to one or both of these sites, download the apps, and get started. If you’re still foggy on how this works, check out this video:



Our tentative plan is to set up a Mapathon at AXS Map, and invite people to register (for free) and commit to enter a certain number of site accessibility reviews. We are thinking we will use September 26 for the kickoff, with an end date of December 31. As soon as the Mapathon is set up, we’ll announce how to get started.

Meanwhile, here is some additional information about the September 26 Access Equality Day:

Dominick Evans - September 14, 2015

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