Bloggy, Podcasty Stats

I decided to take a look at some statistics for the Disability Thinking Blog and the Disability.TV Podcast.

The word "BLOG" written in white chalk on a gray slate blackboardFirst the blog:

At some point today, the total page views will reach 106,500. Over the history of the blog, it has received an average of 132 page views per day, 3,974 page views per month. However, readership has grown fairly steadily, and the blog has been getting more like 200 to 250 page views per day for the last few months.

64% of visitors used desktop computers
26% of visitors used mobile phones
10% of visitors used tablets.

World map with countries listed below in color
Top 10 Countries
(Visitors from 132 countries in all)

United States
Canada
United Kingdom
Australia
Germany
India
France
Philippines
Ireland
New Zealand
Netherlands
Italy
Brazil
Sweden
Japan
Indonesia
Spain
Turkey
Finland
Russia

US map with states listed below in color
Top 10 U.S. States
(Visitors from 50 states in all)

California
New York
Texas
Massachusetts
Illinois
Pennsylvania
Florida
Virginia
Washington
New Jersey
Ohio
Maryland
Michigan
Georgia
North Carolina
Minnesota
Oregon
District of Columbia
Wisconsin
Colorado

Top 10 Most Viewed Posts











Microphone icon
Now a look at the podcast:

22 episodes, 8,793 total plays.

Top 10 Episodes











Top 10 Countries
(Listeners from 55 countries in all)

United States
Canada
United Kingdom
Argentina
Australia
Portugal
Austria
Taiwan
New Zealand
India

It's nice to know people are reading and listening. However, I have to say that the routines of blogging and podcasting are satisfying all by themselves ... far more fulfilling that I imagined they would be when I started.

Notable Tweets

I found these in my notes from last week. I saved them because together they explain why "Inspiration Porn" is bad. It's not just because it implies most disabled people are pathetic. The real problem is that by highlighting personal virtue, Inspiration Porn distracts from the unjust and entirely changeable situations that make such virtue necessary. Recognizing this takes nothing away from the individuals being virtuous by the way. In the absence of justice, a bit of one-on-one kindness and sacrifice is better than nothing. But let's not mistake them for solutions.

Hospital Blogging! Conclusion

Hospital icon on the left, active wheelchair icon on the right
Before I finish this “Hospital Blogging!” thing, I think it’s important to acknowledge that many people with disabilities have a much more difficult time in the hospital than I did. Partly this is because independent, empowered disabled people experience their disabilities in fundamentally non-medical ways, while the medical profession, naturally, sees disabilities as medical problems within their purview. It’s a culture clash.

However, in my indirect experience assisting other disabled people, the disabled people who have the most difficulty in hospitals are those with what I like to call “Rodney Dangerfield Disabilities” … disabilities that "don’t get no respect." Emotional / mental impairments fall within this category. So do certain chronic pain / chronic illness conditions like Fibromyalgia, POTS, Chronic Fatigue Syndrome. In fact, any conditions that are hard for doctors to precisely identify, localize, and treat tend to be treated with skepticism, which means the people who have these conditions are treated as suspect.

For a variety of reasons, the medical profession seems to be on guard against being duped or swindled by a supposed horde of lazy malingerers, “head cases”, and just plain drug seekers. I suppose all three exist, and hospital personnel probably do meet them more than most of us. But huge numbers of disabled people are tarred with this suspicion, which poisons what should be a collaborative and trusting patient / provider relationship. When you are in the hospital, by necessity, and that’s how they feel about you, your can’t even get away. You’re stuck needing treatment from people who won’t give it to you, but in a weird way won’t let you go either.

I am lucky that I have never experienced this for myself. It’s a huge problem that still needs a lot of work.

If you want to read my hospital blog posts again, from start to finish, here are the links:


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Hospital Blogging! Part 5

Hospital icon on the left, active wheelchair icon on the right
I am home again after just shy of a week in the hospital being treated for pneumonia. Aside from having to go in the first place, things could not have gone better for me. Of course, being in my own place again is bliss.

I have been an inpatient at my local hospital I think 5 times now since I moved back to my hometown in 1991. Roughly speaking, each stay has been an improvement on the last in terms of how they dealt with my disabilities. Like all hospitals, there are bureaucratic absurdities and staff that just don’t get it. But for me at least, things have gotten steadily better. Maybe the best thing about this is that when I am very sick, I don’t hesitate to seek full-on treatment out of fear of just being in the hospital. Unfortunately, I have known many disabled people who can’t say this.

If I had to choose one factor that can either make or break how hospital staff deal with patients who have long-term disabilities, I would pick flexibility.

More recently trained providers seem to have an easier time reconciling their need to follow procedures with our need to do things differently due to our disability and self-care routines. The very best mesh the two so smoothly that you don’t notice any conflict at all. These are also the ones who have a knack for introducing new ideas for our better health going forward, without making us feel threatened or criticized.

My experience this week was that by far most of the staff at this hospital are flexible in this critical way. A few of them seemed uncomfortable with the words, phrases, and tones that had been carefully drilled into them. A collaborative approach seemed uncomfortable to them. That’s okay, it doesn’t have to be perfect. In any case, I’d say 75% of the nurses, doctors, and technicians who treated me had no trouble being in charge in the best way medically, while never treating me like a subordinate or worse, a failure for being there.

Flexibility, the willingness to see and do things differently, allows hospitals to offer the best of both worlds to disabled patients. They provide safe, expert, authoritative treatment and advice for acute illness that is beyond us, in an environment that does not rob us of our hard-won independence and agency.

Hospital Blogging! Part 4

Hospital icon on the left, moving wheelchair icon on the right
Or, “Tiggers are wonderful things!"

Just to double down on something I mentioned a couple of days ago ...

One way to tell you’re recovering from hospital-level illness is when you start caring again about things you stopped caring about for awhile. For instance, putting on pants and a t-shirt instead of just underwear and a hospital gown. Being a very small guy, I had to wear a gown with Tiggers all over it, and I have to admit, I kind of dug it because Tigger is one of my favorite of the Winnie the Pooh-via-Disney characters. I’m tentatively due to go home Monday though, so it’s time to begin gradually re-upgrading my general living standards. It feels good.

I think I’ll save the shave until I actually get home.

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More hospital blogging:

Hospital Blogging!
Hospital Blogging! Part 2
Hospital Blogging! Part 3

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Mainstream Article on Disability Etiquette

Multicolored word cloud around the word Ettiquette
Ana Swanson, Washington Post Wonkblog - April 24, 2015

You can’t swing a deceased feline in the Disability Blogosphere without hitting lists of advice from disabled people, offered to non-disabled people, on how we prefer to be treated. I think it’s a great exercise for ourselves, and I’ve seen some nice feedback from non-disabled readers, so I know some of them are reading and getting something out of it, too.

This Wonkblog compilation of a Reddit thread is unusually good reading of this kind, and best of all, it’s in a mainstream publication … two of them actually if you count the complete and original back and forth on Reddit. I am especially pleased because I agree with everything on the list. Most of the commenters are saying what disability activists and bloggers say all the time, but I love the irreverence and novelty of how some of these folks explain things. For one thing, they are almost completely free of disability jargon.

I do wonder … Reddit being Reddit … if Ana Swanson intentionally left out angry ableist responses. It's understandable if she did, since she set out to compile good advice, not online hate. However, if there were any ugly comments in the thread, it would be educational to see a sample of them. There is a reference to the common phenomenon of the hyper vigilant, self-appointed guardian of “handicapped parking,” but that is presented mostly as a misunderstanding. The kind of thing I see a lot is people drawing distinctions between “good” disabilities and “bad” ones, a widespread skepticism and intolerance for any kind of “emotional disabilities,” insistence that disabled people who speak out in any way are “just craving attention,” and of course the fiscal conservatives and Libertarians who resent any penny spent on assisting us that comes out of their paychecks.

People who have positive feelings about disabled people and disability issues sometimes can’t imagine that aggressively hateful ableism really exists. It’s so foreign to their thinking that there is a tendency outside the disability community to discount our tales of horrifying ableism as overreaction or misunderstanding. While one must occasionally correct for hyperbole language, the incidents disabled people describe when they let their hair down and really share are quite real. And there are some true haters out there who have special, very intense little resentments directly aimed at disabled people.

I would love to see a compilation like this that not only catalogs online ableism, but categorizes it as well into its most popular themes.

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Thinking About Disability On TV

Disability.TV Podcast logo with URL disabilitythinking.blogspot.comI doubt there are many people who think there's too much disability on TV. People come up with all kinds of reasons why it’s so rare, and why disability stories are the way they are. However, there is a near consensus that life would be better for disabled people if everyone saw more disabled people in popular culture.

That sounds sensible, though I am skeptical about any definite cause-effect relationship, for the good or the bad. Plus, it doesn’t answer a critical question. Which kinds of depictions do the most harm, and which the most good? What exactly are we looking for in disability on TV?

I love TV, I am disabled, and I like digging into why popular culture is the way it is, and what that means for people in real life. That’s why I started a podcast, Disability.TV, and why I have been participating in some great discussions about this on social media, including Saturday evening #FilmDis Twitter discussions. I’ve got so many questions and ideas floating around, at this point. I think this would be a good time for a brain dump. I’d like to see what others think about the questions I have been hashing out.

Questions

Would it be enough just to see more disabled characters on TV shows? What is the relationship between quantity and quality?

Injured man in a fully enclosing futuristic wheelchair
Do we want to see only uplifting disabled characters? Is there any value in disabled characters who aren’t admirable, or do they run too much risk of sending the wrong messages about disabled people?

Do most disabled characters on TV present an authentic disabled person’s point of view, a non-disabled person’s point of view, or a TV writer’s need for something to drive the plot?

What about TV portrayals of some of the terrible ways disabled people have been treated, now and in the past? When does accurate, brave depiction of evil become just more exploitation?

Do we automatically count it against a show if characters on it say things about disability we disagree with? What does it mean when a show clearly wants us to believe one thing about disability, but we see something else entirely on the very same show?

Marlee Matilin as Joey Lucas on The West Wing, signingIs it possible to have good disability portrayals in comedy, without it devolving into mockery?

Are disabled character behaviors that fit into disability cliches and stereotypes inherently offensive?

Is it always offensive for non-disabled actors to play disabled characters? In addition to questions of equal opportunity for disabled actors, is it akin to blackface? Does “cripping up” negate any other value in a depiction?

Is there a correlation between broad popularity and good disability portrayals?

What kinds of disabled characters and disability situations on TV give us joy?

Tyrion Test

Before starting the Disability.TV Podcast, I tried to come up with a simple, clear criteria for judging disability on TV or in the movies. I started with the Bechdel Test, which evaluates how a show or movie portrays women, based on whether it:

1) Features at least two women, who

2) Talk to each other,

3) About something other than a man.

After a few tries, I came up with what I called the Tyrion Test, after my favorite disabled character, Tyrion Lannister on Game Of Thrones:

1) At least one character with disabilities is involved in significant plot developments not centered on their disabilities,

2) Disabilities are depicted realistically, neither less nor more severe than they would be in real life, and

3) Disabled characters are givers as well as receivers … supportive of other characters, not just supported by them.

This is an interesting measure, I think, but it leaves too many angles unexamined.

5-Star Rating System for Disability Onscreen

After several months of podcasting, and conversations about this over Twitter, I decided to come up with a more traditional 5-star rating system, similar to what Netflix and some critics use to rate movies and TV shows. Each TV show can earn up to 5 stars, but each star represents a particular measure.

Authenticity … Are the details of disability portrayed accurately?

Characters … Are disabled characters fully developed, low on cliché, and more than just plot devices?

Messages … Does the work have something to say about disability?

Representation … Are disabled characters played by disabled actors?

Watchability … Is the work overall entertaining and high-quality?

Chief Robert Ironside in wheelchair, with 3 team members
I allow half stars.

The best thing about this system is that it allows full credit for parts of the depiction that work, and takes proportional credit off the score for aspects that fail. Each category is of about equal value. So, since disabled characters are very rarely played by disabled actors, even some very good shows will loose half or a full star for lack of Representation. Similarly, if a show dutifully checks all the speciality disability boxes, but is dull and poorly presented, it’s not going to earn full credit for Watchability, which can significantly impact the show’s overall star rating.

On the other hand, I feel a little like the dour Headmaster in Dead Poet's Society who takes over Mr. Keating's class and tries to teach the kids how to appreciate poetry by use of charts and graphs.

How do you respond to disability on TV? What do you hate to see, and what would you most like to see?

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Hospital Blogging! Part 3

Large "H" hospital icon on the left, active wheelchair icon on the right

I am out of insights today on the hospital scene. Everything is fine, but there’s not much else to report. My only observation is that I have started noticing the quickly re-learned dependency creeping in. Since I think I’m on the way to being better, it’s time to start doing more for myself. That’s not an original thought, and everyone who spends time in the hospital deals with this. But it’s at least a slightly bigger deal for those of us with disabilities.

It's Throwback Thursday. A year ago in Disability Thinking: Blech!

Well, that’s an interesting coincidence.

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