“Cripface"

Photo of an old-style movie camera
Scott Jordan Harris, Slate.com - January 20, 2014

I look for three things in TV and film depictions of disability:

1. Authenticity about the details of the disability.
2. Fully developed disabled characters.
3. Insight into real-life disability issues.

Number 3 is optional. Authenticity and fully developed disabled characters are quite often enough for a satisfying disability depiction. Tackling disability issues is a nice extra, when done naturally and not in a “You see Timmy …” moment.

To me, the issue of “Cripface” ... non-disabled actors playing disabled characters ... isn’t whether it is inherently wrong or offensive, so much as whether or not it meets these criteria, resulting in good depictions of disability.

It’s probably important to note here that “good” and "satisfying" often means different things to disabled and non-disabled viewers. The typical moviegoer or TV-watcher seems to have different criteria for disability stories and disabled characters:

1. They want to feel happy when the thing is over.
2. They like feeling lots of feels … sadness, pity, admiration, inspiration.
3. They want to think they have learned about certain disabled people, but they aren’t so interested in learning about disability itself or disability-based injustice.
4. They love “stunt” acting, where an actor convincingly portrays a character that is completely unlike themselves.

I think number 4 is where the Oscar-bait thing comes in. When a non-disabled actor seems to do a good job of playing disabled, most viewers latch onto it as a clear example of raw acting ability. Since a lot of acting talent is subtle and hard for non-critics to identify, there may even be some excitement about being able to easily pinpoint when an actor has done something really difficult … like an able-bodied actor playing a well-known disabled person. Eddie Redmayne looks a lot like Stephen Hawking, so right away, there's an assumed element of "Wow!"

One reason I like this Slate review is that it does give some specific evidence that maybe Eddie Redmayne and the writers didn’t, in fact, do such a great job of portraying Stephen Hawking. I haven't seen 'The Theory Of Everything", so I can't judge for myself. What Mr. Harris describes, however, is not encouraging.

As I indicated, I think it can be done well. I still greatly admire “My Left Foot”, in which the non-disabled actor Daniel Day-Lewis played Christy Brown, an Irish poet who had Cerebral Palsy. I think one reason I still like that film is that the writers made sure to give us a pretty full picture of the man, and avoided most of the usual disability cliches, like dreaming of being “normal” and being super-sweet, that make so many disability depictions seem fake and predictable. It also introduced and fully explored some truths about disability that aren't as familiar to mainstream audiences ... such as the complex nature of disability sexuality, and the problematic ways that "do gooders" often relate to disabled people. Finally, I got stuff out of "My Left Foot", as a disabled person, that I'll bet most viewers missed. It sounds to me like there's nothing challenging or original in "The Theory Of Everything" ... nothing that will rock any disabled viewer's world.

It does seem like “My Left Foot” is the exception that proves the rule. “Cripface” is bad because it’s inherently offensive, but what’s even worse is that most of the time it produces bad art. Put another way, non-disabled actors are apt to make mistakes, and allow mistakes to be made, that disabled actors just wouldn't.

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#SOTU4PWD 2015

Light blue Twitter logo

Overall, I was very impressed with the Address. A lot of the policy initiatives President Obama talked about are right up my alley, politically. And truly, many of them would, if enacted, be especially helpful to disabled Americans.

That said, I was surprised that people with disabilities got only a very brief, basically positive, but rather sloppy mention at the end. Look, I’m not suggesting that it’s an insult of some kind that the President didn’t talk about long term care, the disability employment gap, or our apparently never-ending quest for better accessibility. Those of us who are disabled and who were motivated last night to participate in the #SOTU4PWD Twitter hashtag have an understandably skewed perspective on disability issues. Actually, it’s probably the right perspective, but most of our fellow citizens would find more detailed discussion of our issues incomprehensible.

Still, I am surprised that the President didn’t at least mention the ABLE Act, which he signed into law in December. While I have reservations about how the bill turned out in the end, it was a step in the right direction on an issue unique to disabled people, and the bill passed with rare bipartisan support. Since the President chose to make what sounded like a final, kind of wistful pitch for his original idea … more respect and cooperation in American politics … it seems strange that he didn’t cite it as an example.

A few folks on Twitter last night also mentioned how incomplete the President’s mention was at the end … “Americans with mental illness or physical disability,” an odd choice of words that suggests awareness of the need to be inclusive, but insufficient awareness to actually be fully inclusive.

Are we really surprised though? This is exactly the kind of incompleteness that characterizes ableism, especially in liberal, progressive, social justice circles. You have good intent, not enough knowledge, and yet, crucially, not enough motivation to ask anyone how to actually follow through in the right way. As I have said before, I don’t expect people to know this stuff … I just wish they’d take the time to ask.

I think the best thing about the evening was seeing so many disabled Twitterers making smart, pertinent connections to disability issue throughout the speech. This kind of engagement is how we will get to a day in some future January when a President will mention real disability issues, and understand not only how they are important to us, but to the rest of the country, too.

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What I Would Like President Obama To Address In His State Of The Union Address

Color photo of Presidential podium
I will resist the temptation to watch the end of the Canadiens vs. Predators game, do my civic duty, and watch the State Of The Union Address. Actually, I’m into this kind of thing, so it’s not really a hardship.

It’s pretty rare for presidents to talk about disability issues in these addresses, but not unheard of. Here is an admittedly idealistic list of things I would like the President to mention tonight … though I won’t be too surprised or disappointed if he doesn’t:

- If he talks about citizens killed by police … a hot-button issue he may well ignore altogether … I hope he mentions the risks to disabled people like Ethan Saylor, too.

- I really do hope he voices strong support for fully funding Social Security Disability, with a strong repudiation of panicky myths about SSDI being “out of control”.

- He should shame the Senate for still failing to ratify the UN Convention on the Rights of Persons with Disabilities.

- If he cites the ABLE Act as a rare example of bipartisan cooperation, it would be great if he would refer to it as a starting point, not a problem completely solved.

- It is always a good year to broach the subject of long term care, and double down on support for programs that enable the elderly and the disabled to live independently in their own homes.

- It would be an interesting moment right now … while he addresses income inequality and middle class stagnation ... to advocate a final end to paying sub-minimum wage to workers with disabilities.

I will be following the #SOTU4PWD hashtag during the speech. If there’s anything interesting in it, I will do a blog post about it tomorrow.

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An Important Clarification On Assisted Suicide

Diane Coleman, Not Dead Yet - January 19, 2015

This statement from the disability rights organization Not Dead Yet was prompted by a specific, “inside baseball” sort of event, but the statement turns out to be a very effective explanation of why many disabled people and disability organizations oppose legalization of assisted suicide and euthanasia. Plus, it underscores crucial differences between disability opposition to these causes and the “right to life” movement.

The disability rights argument against assisted suicide and euthanasia is almost entirely different than the traditional moral / religious arguments against them, and organizations like Not Dead Yet should not be conflated with conservative and religious organizations like the Family Research Council and Right To Life. There is definitely some overlap in regard to policy, but very little in ideology.

The fact that I oppose assisted suicide and euthanasia doesn’t indicate that I’m a right-winger or religious fundamentalist. Far, far from it. By the same token, agreement on this particular policy issue doesn’t mean that religious right groups necessarily understand or really care about the disability rights perspective.

You can see similar clarifications being mapped out right now over Senate Bill 334, which would ban abortion based on disability or gender. I admit, it’s messy. But the distinctions make sense and they are more or less consistent.

Newbie FAQs: MLK Day

FAQs spelled out in 3-D blue letters with a computer mouse in front
What does disability have to do with the Martin Luther King Holiday?

It’s risky to draw out too many similarities between disability and race. It’s really easy to make these kinds of analogies glib and appropriative. It’s also tempting, and not in a good way, to try and make everything about the Civil Rights Movement match up perfectly with the Disability Rights Movement. The whole thing can get pretty ridiculous and insulting very quickly.

The reason we may think of making the connection is pretty valid though. The everyday experience of both race and disability include social stigma and practical discrimination. In fact, there are reasonable arguments to be made that both race and disability are actually social constructs … that they are in fact all about prejudice, and very little about anything else. I think it’s also worth acknowledging that historically, both the Civil Rights and Disability Rights movements focused on laws and policies to bring about change. And both, to different extents, have seen the limits on how much you can change everyday life by changing laws. You have to do it, but it’s not enough by itself.

Finally, I would say that while the experience of disability is very different in many ways from the experience of race, it is nevertheless true that for many of us with disabilities, disability feels more like race, or other social identities, than it feels like illness or disease. That is still a surprise to some folks when they hear it, and it tends to be a key conceptual breakthrough for disabled people, too, when they have that realization.

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Disabled TV Character Face-Off: Fifth Round

Tyrion Lannister beat Geordi LaForge in the fourth round.


Here is the updated bracket:


The fifth round features Max Braverman vs. Walter “Flynn” White, Jr. Which character do you like best?

Max Braverman
Disability: Asperger Syndrome.
Role on the show: Secondary character in ensemble cast.

Walter “Flynn” White, Jr.
Actor: RJ Mitte
Disability: Cerebral Palsy.
Role on the show: Secondary character in ensemble cast.

Create your free online surveys with SurveyMonkey , the world's leading questionnaire tool.

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For What It’s Worth ...


They don’t address the social or political implications of his recent statements. They don’t try to judge either way whether certain kinds of disabilities are truly disabling or not. That’s good though. PolitiFact isn’t any more qualified to assess the experiences of different disabilities than Sen. Paul is. They are fully capable of that on strict statistics alone, Sen. Paul is wrong, and that’s saying plenty.

Don't Look Away

American Horror Story: Freak Show poster
In a little over a week, I will post an episode of the Disability.TV Podcast in which I will discuss American Horror Story: Freak Show with Jane Hash, of the Hash It Out With Jane Podcast.

Sneak preview:

If you are disabled and you care about disability issues, social stigma, ableism and the like, you should at the very least watch the first episode, “Monsters Among Us”. I’m not going to say whether the show is good or bad, offensive or heroic, sensational or thoughtful. Just don’t ignore it because it seems on the surface like it must be nasty and exploitative, by definition. There is more there than meets the eye, and more there, too, than the writers probably know.

Disability Fight: Followup

picture of a stack of newspapers with NEWS in big bold headline at the top
Igor Bobic, Arthur Delaney, Huffington Post - January 14, 2015


Sen. Rand Paul couldn’t have laid out a more appealingly wrong case that Social Security Disability is broken:
“What I tell people is, if you look like me and you hop out of your truck, you shouldn’t be getting your disability check. Over half of the people on disability are either anxious or their back hurts. Join the club,” he added. “Who doesn’t get up a little anxious for work every day and their back hurts. Everybody over 40 has a little back pain.”
The problem isn’t that he is wrong, that, in fact, many people are severely debilitated by “anxiety”, and that “back pain” can be devastating. The problem is that what he says here is exactly how a lot of otherwise decent people really think about disability, and about Social Security Disability. In fact, there are probably a lot of disabled people who think this way, too.

The other big potential problem is that Rand Paul, specifically, gets way more benefit of more doubt than most Republicans, because he’s a “Libertarian”. He’s a U.S. foreign policy skeptic. He’s a rare, if inconsistent voice agains the National Security State. He’s favorably disposed towards pot legalization and against the War On Drugs. Sen. Paul is an appealing figure to people who crave someone with a “different” approach to the usual issues, but who aren’t that interested in following ideas to their logical policy conclusions.

I don’t know how to combat this kind of rhetoric, but we’d better figure out soon, because I think we’re going to hear a lot more of it in the near future.