Weekly Wrap-Up

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Monday, December 22, 2014

"It seems like everything else I have read in the last couple of weeks has been either a completely uncritical fluff piece on how awesome it is that Congress passed the ABLE Act, or bitter and somewhat over the top denunciations of the law’s last-minute limitations."

Tuesday, December 23, 2014

"Happy Holidays!"

Saturday, December 27, 2014

"It’s the kind of day where it feels just right to spend a little time catching up on a good web series, like My Gimpy Life."



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My Gimpy Life Rewatch

I’m just checking in. I’m still on a blogging break, mostly.

I think I like the days between Christmas and New Years better than either of the really big occasions. Everything feels more loose and free-form. It’s the kind of day where it feels just right to spend a little time catching up on a good web series, like My Gimpy Life.



High on the list of Things I’d Like To See:

Amy Schumer and Sarah Silverman as guest stars on My Gimpy Life.

Teal Sherer as a guest comedian on Jerry Seinfeld’s Comedians In Cars Getting Coffee.

Technically, she doesn’t need one, but it would be great to see Jerry hunt down a high-end ramp van to use as the “car”.

Best Article On The ABLE Act

Justin King, New America Foundation Weekly Wonk / Vox.com - December 19, 2014

Large kudos to Vox.com for posting the best article on the ABLE Act I have ever read. It accurately describes the problem the ABLE Act was designed to address, properly notes that the new law will probably help, but also explains the new law’s shortcomings. It seems like everything else I have read in the last couple of weeks has been either a completely uncritical fluff piece on how awesome it is that Congress passed the ABLE Act, or bitter and somewhat over the top denunciations of the law’s last-minute limitations. This article even describes exactly how the law itself is a better deal for higher income than lower income families and individuals … something a few Tweets and blog posts alluded to in dire tones in the lead-up to passage, but rarely explained.

Beyond this particular issue, I think it’s really important for the disability activist community to encourage high-quality reporting from mainstream news and opinion outlets on disability policy. Most disability stories come off as journalism-lite … lots of sugary flavor and zero calories.

(Hat tip to the Autistic Self-Advocacy Network).

Stella Young Memorial

Melissa Davey, The Guardian - December 18, 2014

A memorial event for Stella Young was held on Thursday, December 18, in the Town Hall of Melbourne, Australia.

I don’t have anything to add really. Just watch the videos.

Nelly Thomas



Graeme Innes



Stella Barton

The Boy With The Cane. Or, What The Heck Is A "Pool Noodle"?

Photo of a stack of newspapers with a big headline NEWS on top.
Fox2 Now St. Louis - December 17, 2014

So, first I had to look up what a “pool noodle” is. Turns out it is a long, thick, semi-flexible “stick” made of squishy styrofoam, used as a toy or perhaps a sort of float by kids in swimming pools. Looking at pictures of “pool noodles”, I can see right away what the school staff were thinking. It’s long and semi-rigid, so it could, in theory, provide some of the sensory feedback of the canes used by blind people. At the same time, it is made of a material that can’t really hurt anyone, even if used as a deliberate weapon. I’d bet real money that there is at least one person at that school who really, honestly thought they had come up with a brilliant solution to a perceived disciplinary problem.

Of course, one suspects that the “problem” was either overblown or nonexistent. Dakota’s parents say it was all a misunderstanding … that the bus attendant might have seen him raise his cane and assumed it was to hit someone.

To me, this isn’t the issue. Dakota is still a young boy. It’s entirely possible that on occasion, he’s used his cane in questionable ways. It’s also possible he’s still learning how to control his cane, and not accidentally bump it into people or trip them up. The point to me is that the school should have a more thoughtful set of guidelines and procedures for how to deal with Dakota if he should misbehave, as most 8-year-olds misbehave from time to time. And a central tenet of any disciplinary plan should be to never take away an assistive device a child depends on for independence and mobility. This would apply to canes, crutches, a speech device, a wheelchair, or any other equipment that helps them with their particular disability.

It seems to me that part of the formula for kids like Dakota should be some sort of peer counseling “real talk” where someone he trusts … maybe a blind adult ... tells him, as a friend and ally, that assistive devices should never be used as weapons or to cause mischief. Teach disabled kids that they have an absolute right to their devices. They are not revokable privileges like a cell phone. But they also have a responsibility to use and look after their devices with great care. That seems like an essential bit of “growing up” that disabled kids, in particular, have to do. In a way, it’s part of learning self-advocacy.

As a side note, I found it kind of appalling that apparently, the cane was supplied by the school, which is one of the excuses the school used for taking it away. I suppose it’s good they provided the cane, if Dakota’s family can’t afford one, but also reminds me of all the ridiculous angst some school administrators go through over fears that school-provided assistive devices will be “misused” … including being taken home. Especially with something like a cane, whoever pays for it ought to just give it to the person who needs it, with no strings attached.

Update: Via @SFdireworlf, Dakota's school district apologized for taking his cane away. 1. I hope the district also agrees on a disciplinary policy that excludes confiscation of adaptive devices, and 2. I hope Dakota gets a cane of his own.